21st Report of the Malaysian Dialysis and Transplant Registry 2013
21 TH REPORT OF
THE MALAYSIAN DIALYSIS &
TRANSPLANT REGISTRY 2013
Sponsors:
Malaysian Society Of Nephrology
Association Of Dialysis Medical Assistants And Nurses
The National Renal Registry Is Funded With Grants From:
The Ministry Of Health Malaysia
Roche
AIN Medicare
Baxter Healthcare
Fresenius Medical Care
Lucenxia
i
June 2014
© National Renal Registry, Malaysia
ISSN 1675-8862
Published by:
The National Renal Registry
Malaysian Society of Nephrology
Suite 1604, Plaza Permata
6, Jalan Kampar
50400 Kuala Lumpur
Malaysia
Telephone. : (603) 4045 8636
Direct Fax : (603) 4042 7694
e-mail
: [email protected]
Web site : http://www.msn.org.my
Important information:
1.
This report is copyrighted. However it may be freely reproduced without the permission of the National Renal
Registry. Acknowledgment would be appreciated. Suggested citation is: BL Goh, LM Ong, YN Lim, (Eds) Twenty
First Report of the Malaysian Dialysis and Transplant 2013, Kuala Lumpur 2014
2.
This report is also published electronically on the website of the National Renal Registry at: http://www.msn.org.my
3.
Hard copies of the report can be made available with donation of RM100.00 per copy to defray the cost of printing.
ii
ACKNOWLEDGEMENTS
The Malaysian Dialysis and Transplant Registry of the National Renal Registry would
like to thank each and everyone who have in one way or another contributed to
the success of the Malaysian Dialysis and Transplant Registry.
In particular we would like to thank the following:
The Nephrologists, physicians and staff of the Dialysis and
Transplant follow-up centres: thank you for participating in the Registry.
The success of the Registry depends on you.
The Ministry of Health, Malaysia for financial support and
other support seen and unseen;
The Clinical Research Centre, in particular Dr Goh Pik Pin and Dr Jamaiyah
for their tireless effort in supporting the work of registries.
For their generous support:Roche
AIN Medicare
Baxter Healthcare
Fresenius Medical Care
Lucenxia
iii
NRR ADVISORY COMMITTEE MEMBERS
2012 to 2014
MEMBERS:
MSN APPOINTMENT:
FACILITIES
Datuk Dr. Ghazali Ahmad
Chairman
Hospital Kuala Lumpur
Prof. Dr. Abdul Halim Abdul Gafor
University representative
University Kebangsaan Malaysia Medical Centre
Dr. S. Prasad Menon
Private sector representative
Sime Darby Medical Centre Subang Jaya
Dato’ Dr. Ong Loke Meng
CRC representative
Hospital Penang
Mr. Tam Chong Chiang
ADMAN representative
Hospital Tengku Ampuan Afzan, Kuantan
Dr. Lim Yam Ngo
MDTR sub-committee Chairperson
Hospital Kuala Lumpur
Dr. Wong Hin Seng
eMOSS sub-committee Chairperson
Hospital Selayang
Dr. Rosnawati Yahya
MRRB sub-committee Chairperson
Hospital Kuala Lumpur
Dr. Goh Bak Leong
MDTR Editor
Hospital Serdang
Dr. Rafidah Abdullah
Honorary MSN Treasurer
Sultan Haji Ahmad Shah Hospital
STATISTICIAN
Jasmine Chew Sze Ming
NRR MANAGER
Lee Day Guat
Choo Cheh Loo
CLINICAL RESEARCH ASSOCIATE
Suhazelini Ali
iv
A
DIAL
LYSIS AND
ABOUT THE MALAYSIAN
DIALYSIS
TRANSPLANT REGISTRY
GISTRY (MDTR)
(
(MDTR)……..
)
The Malaysia Dialysis and Transplant Registry (MDTR) collects information on patients with end stage renal disease (ESRD) on renal
replacement therapy (RRT) in Malaysia.
Objectives:
The objectives of the registry are as follows:
1. Describe the natural history of ESRD. The registry shall describe the characteristics of patients with ESRD, its management,
and patient survival and quality of life outcomes with treatment; and shall describe variation thereof across different groups,
healthcare sectors or geographic regions, and its secular trend over time in Malaysia.
2.
Determine effectiveness of treatments for ESRD. The registry shall determine clinical effectiveness and cost effectiveness
of treatments of ESRD in real-world clinical practices in Malaysia.
3.
Monitor safety and harm of products and services used in the treatment of ESRD. The registry shall serve as an active
surveillance system for the occurrence of unexpected or harmful events for products and services.
4.
Evaluating access to and quality of treatment services for ESRD. The registry shall assess differences between providers
or patient populations based on performance measures that compare treatments provided or outcomes achieved with “gold
standards” (e.g., evidence-based guidelines) or comparative benchmarks for specific health outcomes (e.g., risk-adjusted
survival rates). Such programs may be used to identify disparities in access to care, demonstrate opportunities for improvement,
establish differentials for payment by third parties, or provide transparency through public reporting.
5.
To maintain the national renal transplant waiting list electronically – the eMOSS or electronic Malaysian Organ Sharing
System. The dialysis registry shall maintain and update patients on dialysis who do not have contraindications to kidney
transplantation onto the national renal transplant waiting list according to published agreed criteria. This list is available on the
web for ready access by the transplant physicians any time a deceased kidney becomes available.
Registry design:
This is a multi-center, observational cohort study designed to evaluate the health outcomes of patients with ESRD undergoing
treatment at participating clinical centres. Patient inclusion criterion is deliberately broad and shall include any patient with a
confirmed diagnosis of ESRD.
There is no prescribed study visits. Patient shall attend the clinical site as and when required per the standard of care at the site.
Required data shall be collected as they become available.
•
A clinical site shall notify all new patients to the registry, and shall continue to do so until the termination of the registry. Patients
shall be follow-up for life.
•
Participation. Site shall notify the patients’ treatment to the registry in a calendar year of its participation. A site shall similarly
notify patients during each year of its participation in the registry.
Registry study population:
The registry study population consists of male or female patients with ESRD to be recruited from participating sites in Malaysia.
Participation in this study is voluntary. However, in accordance with the Private Health-care Facilities Act 1998 (AKTA 586), all
dialysis health facility are required to submit data to the Malaysian Dialysis and Transplant Registry (MDTR).
v
All clinical centres or sites that satisfy the following selection criteria will be invited to participate:
This registry is opened to all clinical sites that provide RRT services for patients with ESRD in Malaysia.
Each site shall have a Principal Investigator who is also a licensed physician / Surgeon and a qualified professional experienced
with ESRD management.
Each site shall appoint a Site Coordinator (SC). The SC is the person at the participating clinical site who is responsible for all
aspects of registry management and data collection at site, and who will liaise with the Clinical Registry Manager (CRM) and
Clinical Registry Assistant (CRA) at the Registry Coordinating Centre (RCC).
Each site shall accept responsibility for data collection, as well as for ensuring proper record keeping and registry document
filing.
Each site shall agree to comply with the registry procedures and shall be willing to be subjected to ongoing review of data by
CRM or CRA or other representative of MDTR. This may include one or more site visits by prior arrangement
Patient eligibility criteria:
•
All new patients with ESRD undergoing treatment at a participating clinical site are eligible for entry into the registry.
•
In addition, a site may opt to enter existing patients on follow-up at the site into the registry.
Registry data:
The data elements to be collected by the registry shall be relevant and reliable with modest burden to sites, shall comply with
existing data standard where this exists, shall be compatible with established data set used by other existing registries, and shall
employ standard terminology (dictionary) where available.
Two datasets are defined:
•
Core dataset: These are data elements that are needed to address the key questions for which the registry was created.
•
Non-core dataset: these are speculative data elements included to provide an opportunity to generate hypotheses or to explore
other subsidiary questions not of primary interest to the registry.
The data domains and related specific data elements to be collected by this registry is tabulated below:
A
Identifier
Name, NRIC number, Other identifying document numbers, Address, Contact numbers
B
Demographics
Age, Sex, Ethnicity, Educational attainment, Occupation, Household Income group, Weight
& Height, Use of tobacco, Funding for Treatment
C
Medical history
Medical history/ comorbidities, Family history
D
ESRD diagnosis
Date of first diagnosis, Date re-entering each RRT.
E
Laboratory investigations
Date & time of tests, Blood chemistry, Hematology, Serology
F
Treatment
Modalities of RRT- haemodialysis, peritoneal dialysis; treatment of other uraemic
complications; kidney transplantation
G
Outcomes
Patient survival; death, date of death, cause of death
Quality of Life/ Work rehabilitation status
H
Economics
Source of funding for dialysis treatment, and immunosuppressive drug treatment for
transplantation
J
Healthcare provider
characteristics
Sector providing dialysis treatment, (private, public or NGO),
vi
PARTICPATING HAEMODIALYSIS CENTRES 2013
Haemodialysis Centre
CC#
AR
801 Rumah Sakit Angkatan Tentera (Kuching)
No
=80%
96 Hospital Angkatan Tentera (Lumut)
Afiat Dialysis Centre
No
No
=80%
Aiman Dialysis Centre
Yes
>=80%
Al-Islam Specialist Hospital
No
=80%
=80%
Alor Setar Dialysis Centre
Yes
>=80%
AMD Rotary (Penang)
Ampang Hospital
Yes
Yes
>=80%
>=80%
Anggun Dialysis Centre
No
No AR
Apex Club of Klang-NKF Charity Dialysis Centre
Yes
>=80%
Asia Renal Care (Sg Petani)
Assunta Hospital
No
Yes
=80%
Bakti-NKF Dialysis Centre
Yes
>=80%
Balik Pulau Hospital
Yes
>=80%
Baling Hospital
Bangi Dialysis Centre
No
No
=80%
Batu Pahat Rotary
Bau Hospital
Yes
Yes
>=80%
>=80%
BBA (Butterworth) Dialysis Centre
No
>=80%
BBA (Kota Kinabalu) Dialysis Centre
Yes
>=80%
BBA (Puchong) Dialysis Centre
BBA (Tawau) Dialysis Centre
Yes
No
>=80%
=80%
Beluran Hospital
Bentong Hospital
Yes
Yes
>=80%
>=80%
Bertam Dialysis Centre
No
No AR
Besut Hospital
Yes
>=80%
Betong Hospital
Bintulu Hospital
Yes
Yes
>=80%
>=80%
Bintulu Specialist Hospital
No
>=80%
BP Renal Care (Batu Pahat)
No
=80%
=80%
BP Renal Care Simpang Renggam
No
=80%
>=80%
Buddhist Tzu Chi Dialysis Centre (Kedah)
Yes
>=80%
Buddhist Tzu Chi HD Centre (Penang)
Yes
>=80%
Bukit Mertajam Hospital
C.S. Loo Kidney & Medical Specialist Centre
Yes
No
>=80%
=80%
Haemodialysis Centre
CC#
Carlatan Dialysis Centre (Bukit Mertajam)
Carlatan Dialysis Centre (Sungai Petani)
Changkat Melintang Hospital
Charis-NKF Dialysis Centre
Che Eng Khor Centre
Cheras Dialysis Centre
CHKMUS-MAA Medicare Charity
Dalat Hospital
Damai Medical & Heart Clinic
Damansara Specialist Hospital
Davita Seri Setia Dialysis Centre
DEMC Dialysis Centre
D'kasih Hemodialisis
DSS Dialysis Centre (Rawang)
Duchess of Kent Hospital
Dungun Hospital
Eagles Dialysis Centre
EAM Dialysis Centre
Fatimah Hospital
Fitra Med
Fo Yi NKF Dialysis Centre (1)
Fo Yi NKF Dialysis Centre (2)
Gerik Hospital
Giat Kurnia Dialysis Centre (Nilai)
Gleneagles Medical Centre
Golden Age Dialysis Centre
Gua Musang Hospital
Haemodialysis Association Klang
Haemodialysis Bestari Kampar
Happy Kid Nees Dialysis Centre
Harmoni Dialysis (Damansara)
Harmoni Dialysis (Sg Long)
Harmony Sofia Dialysis Centre
Healthcare Dialysis Centre
Hemodialisis Yayasan Veteran ATM (S Kembangan)
Hope Haemodialysis Society Ipoh
Hospital Angkatan Tentera Tuanku Mizan
Hospital Daerah Daro
Hospital Enche' Besar Hajjah Khalsom
Hospital Pakar Sultanah Fatimah (Muar)
Hospital Queen Elizabeth II
Hospital Sultanah Hajjah Kalsom
Hospital Sultanah Nora Ismail
Hudaz Dialysis Centre
Hudaz Tunjong Dialysis Centre
Hulu Terengganu Hospital
Ibnu Al-Nafis Dialysis Centre
Iman Dialysis
Imercy Dialysis Centre
Island Hospital
Jasin Hospital
JB Lions MAA-Medicare Charity Dialysis Centre (1)
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
No
No
No
No
No
Yes
Yes
No
No
Yes
Yes
Yes
No
No
No
No
No
Yes
No
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
No
Yes
Yes
No
No
No
Yes
Yes
Note: *=Ceased 2013, CC# =Award of Compliance Certificate, AR=annual treatment return
vii
AR
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
=80%
=80%
=80%
>=80%
>=80%
>=80%
=80%
>=80%
No AR
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
=80%
>=80%
PARTICPATING HAEMODIALYSIS CENTRES 2013 (con’t)
Haemodialysis Centre
CC#
AR
JB Lions MAA-Medicare Charity Dialysis Centre (2)
Jelebu Hospital
Jeli Hospital
Jempol Hospital
Jengka Hospital
Jerantut Hospital
Jerteh Dialysis Centre
JJ Lions Dialysis Centre
Johor Quarries Association Dialysis Centre
Johor Specialist Hospital
Kaizenbros Dialysis Centre
Kajang Hospital
Kampar Hospital
Kanowit Hospital
Kapit Hospital
KAS-Rotary-NKF
Kay Tee Dialisis
Kelana Jaya Medical Centre*
Keluarga Bahagia Haemodialisis
Kemaman Hospital
Keningau Hospital
Kepala Batas Hospital
Klinik Waqaf An-Nur (Ijok)
Kota Belud Hospital
Kota Kinabatangan Hospital
Kota Marudu Hospital
Kota Tinggi Hospital
KPJ Ampang Puteri Specialist Hospital
KPJ Kajang Specialist Hospital
KPJ Klang Specialist Hospital
KPJ Kluang Utama Specialist Hospital
KPJ Penang Specialist Hospital
KPJ Puteri Specialist Hospital
KPJ Sabah Specialist Hospital
KPJ Selangor Specialist Hospital
Kuala Kangsar Hospital
Kuala Krai Hospital
Kuala Kubu Bharu Hospital
Kuala Lipis Hospital
Kuala Lumpur Hospital (Paed.)
Kuala Lumpur Hospital
Kuala Lumpur Lions Renal Centre
Kuala Nerang Hospital
Kuantan Clinical Diagnostic Centre
Kuantan Dialysis Centre
Kuantan Medical Centres
Kuantan Specialist Centre
Kuching Specialist Hospital
Kudat Hospital
Kulim Haemodialysis (CS Tan)
Kulim Hospital
Labuan Hospital
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Yes
No
No
No
Yes
No
Yes
No
Yes
Yes
Yes
Yes
No
Yes
No
Yes
No
No
No
No
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
No
No
No
No
Yes
Yes
No
Yes
Yes
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
=80%
=80%
No AR
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
Haemodialysis Centre
CC#
Lahad Datu Hospital
Lam Wah Ee Hospital
Langkawi Hospital
Lawas Hospital
Likas Hospital (Paed)
Likas Hospital
Lim Boon Sho Dialysis Centre
Limbang Hospital
Lions Club Kota Budaya Dialysis Centre
Lipis Dialysis Centre
Loh Guan Lye Specialist Centre
Lundu Hospital
MAA Charity Dialysis (Kota Bharu)
MAA-Medicare Charity (Butterworth)
MAA-Medicare Charity (Kuala Lumpur)
MAA-Medicare Charity (Mentakab)
MAA-Medicare Charity (Sg Besi)
MAA-Medicare Charity (Teluk Intan)
MAA-Medicare Kidney (Kajang)
Machang Hospital
Mahkota Medical Centre
MAIS Dialysis (Melawati)
Marudi Hospital
MB Star Rawatan Dialisis (Hutan Melintang)
MB Star Rawatan Dialisis (Kelana Jaya)
MB Star Rawatan Dialisis
Melaka Hospital
Mentakab Haemodialysis Unit
Mersing Hospital
Mersing Rotary Centre
Metro Specialist Hospital
Miri Hospital
Miri Red Crescent Dialysis Centre
Muadzam Shah Hospital
Muar Dialysis
Muar Lions Renal Centre
Muhibah Renal Care
Mukah Hospital
Mynephro Dialysis Sdn Bhd
Mysha Qasih Dialysis Centre
Nefrol I-Care
NEPH Dialysis Centre Sdn Bhd
Neph Sdn Bhd (Sg Ara)
Nephcare Dialysis Centre
Nephrolife Dialysis Centre
Nobel Dialysis Centre Tuaran
Nobel Dialysis Centre
Normah Medical Specialist Centre
Northern Dialysis Centre
Nucare Dialysis Centre
Nur Dialysis Centre
Nur Iman Dialysis Pahang
No
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
No
No
No
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
No
No
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
Note: *=Ceased 2013, CC# =Award of Compliance Certificate, AR=annual treatment return
viii
AR
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
PARTICPATING HAEMODIALYSIS CENTRES 2013 (con’t)
Haemodialysis Centre
Pahang Buddhist Association
Pakar Perdana Hospital
Pantai Air Keroh Hospital
Pantai ARC Dialysis Services
Pantai Hospital Ampang
Pantai Hospital Penang
Pantai Hospital Sungai Petani
Papar Hospital
Parit Buntar Hospital
Pasir Mas Hospital
Pekan Hospital
Pelangi Haemodialysis Centre
Pemodalan Negeri Selangor Dialisis Centre
Penang Adventist Hospital
Penang Caring Dialysis Society
Persada Dialysis Centre
Persatuan Amal Chin Malaysia Barat
Persatuan Buah Pinggang Sabah
Persatuan Dialisis Cahaya Kuching
Persatuan Dialisis Kurnia PJ
Persatuan Hemodialysis Kinabalu Sabah
Persatuan Kebajikan Haemodialysis St Anne BM
Persatuan Membaiki Akhlak-Che Luan Khor_NKF
Pertubuhan Bakti Fo En Bandar Kulim
Pertubuhan Dialisis Rotary-Satu Hati
Pertubuhan Hemodialisis Muhibbah Segamat (Labis)
Pertubuhan Hemodialisis Muhibbah
Pertubuhan Hemodialisis SPS
Pertubuhan Kebajikan Amitabha
CC#
Yes
Yes
No
No
Yes
Yes
No
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
No
No
Yes
Yes
Yes
No
No
No
No
Pertubuhan Kebajikan Hemodialisis Hospital Pakar Putra Melaka Yes
No
Pertubuhan Perkhidmatan Haemodialisis Ar-Ridzuan
Yes
Pertubuhan Perkhidmatan Hemodialisis AIXIN Kerian
Yes
Peter Mole MAA-Medicare Charity Dialysis Centre
No
Ping Rong-NKF
No
PJCC Dialysis Centre
PMA Chan Meng Khor-MAA Medicare Charity Dialysis Centre No
Yes
Pontian Hospital
Yes
Pontian Rotary Haemodialysis Centre
Yes
Port Dickson Hospital
Yes
Premier Renal Care
Yes
Prima Dialisis Lagenda Putra
Yes
Prima Dialysis Kluang
No
Prima Dialysis Masai
Yes
Prince Court Medical Centre
Yes
Province Wellesley Renal Medifund
Yes
Pulau Pangkor Hospital
No
Pulau Pinang Hospital (Paed)
Yes
Pulau Pinang Hospital
Yes
Pusat Dialisis & Kesihatan Masjid Bandar Baru Uda
Yes
Pusat Dialisis Aiman (Shah Alam)
No
Pusat Dialisis Airah
Yes
Pusat Dialisis Albukhary
AR
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%#
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
No AR
>=80%
Haemodialysis Centre
AR
Yes >=80%
=80%
=80%
Yes >=80%
=80%
Yes >=80%
Yes >=80%
Yes >=80%
No >=80%
Yes >=80%
=80%
No >=80%
Yes >=80%
No >=80%
=80%
=80%
No >=80%
No >=80%
Yes >=80%
Yes >=80%
Yes >=80%
=80%#
=80%
Yes >=80%
Yes >=80%
Yes >=80%
Yes >=80%
Yes >=80%
Yes >=80%
=80%
Yes >=80%
Yes >=80%
Pusat Dialisis NKF-Yayasan Dialisis Pertubuhan Pendidikan Akhlak Taiping Yes >=80%
Yes >=80%
Pusat Dialisis NKF-Yayasan Sultanah Bahiyah
=80%
>=80%
>=80%
=80%
No AR
>=80%
>=80%
>=80%
=80%
=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%#
>=80%
=80%
No AR
>=80%
>=80%
>=80%
>=80%
=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
PARTICPATING HAEMODIALYSIS CENTRES 2013 (con’t)
Haemodialysis Centre
CC#
AR
Pusat Hemodialisis Mawar N. Sembilan (Seputih)
Pusat Hemodialisis Mawar N. Sembilan (Seremban)
Pusat Hemodialisis Mawar N. Sembilan (Seri Kembangan)
Pusat Hemodialisis Mergong
Pusat Hemodialisis Muar
Pusat Hemodialisis Nabilah
Pusat Hemodialisis Nilam (Semenyih)
Pusat Hemodialisis Nour
Pusat Hemodialisis Perkis
Pusat Hemodialisis Permata
Pusat Hemodialisis PMKL
Pusat Hemodialisis PUSRAWI
Pusat Hemodialisis Qaseh
Pusat Hemodialisis Rotary Kota Tinggi
Pusat Hemodialisis Rotary Kulai
Pusat Hemodialisis S P
Pusat Hemodialisis Sejahtera (Batu Pahat)
Pusat Hemodialisis Sejahtera Muar
Pusat Hemodialisis Seroja (Baling)
Pusat Hemodialisis Seroja (Kulim 1)
Pusat Hemodialisis Seroja (Kulim 2)
Pusat Hemodialisis Shah Alam
Pusat Hemodialisis Sinona
Pusat Hemodialisis SJAM Pulau Sebang
Pusat Hemodialisis Syifa (Batangkali)
Pusat Hemodialisis Syifa (Bukit Gambir)
Pusat Hemodialisis Syifa (Pendang)
Pusat Hemodialisis Waz Lian
Pusat Hemodialisis Yayasan Toh Puan Zurina
Pusat Hemodialisis Zakat (Balik Pulau)
Pusat Hemodialisis Zakat (Bukit Mertajam)
Pusat Hemodialisis Zakat (Butterworth)
Pusat Hemodialisis Zakat (Kepala Batas)
Pusat Hemodialisis Zakat (P. Pinang)
Pusat Hemodialsis Mutiara
Pusat Hemodialysis Bestari
Pusat Hemodialysis Medipro Alliance
Pusat Hemodialysis Suria (Bentong)
Pusat Hemodialysis Suria (Melaka)
Pusat Hemodialysis Suria Kuantan
Pusat Hemodialysis Yayasan Veteran ATM (Batu Caves)
Pusat Jantung Hospital Umum Sarawak
Pusat Kelestarian Dialysis
Pusat Kesihatan Jitra
Pusat Kesihatan Universiti (UTHO)
Pusat Pakar Dialisis Traktif (Besut)
Pusat Pakar Dialisis Traktif (Jitra)
Pusat Pakar Dialisis Traktif (Kuala Pilah)
Pusat Pakar Dialisis Traktif (Seremban)
Pusat Pakar Dialysis Traktif
Pusat Pakar Tawakal
Pusat Perbadanan Islam (Segamat)
Yes
No
No
Yes
No
No
Yes
Yes
No
Yes
No
No
Yes
No
Yes
Yes
No
Yes
Yes
Yes
No
No
No
No
No
No
No
Yes
Yes
Yes
Yes
Yes
No
Yes
No
No
No
Yes
Yes
No
No
Yes
Yes
Yes
No
No
No
Yes
No
Yes
No
Yes
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
=80%
>=80%
=80%
=80%
>=80%
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
=80%
>=80%
=80%
>=80%
No AR
=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
No AR
=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
PARTICPATING HAEMODIALYSIS CENTRES 2013 (con’t)
Haemodialysis Centre
CC#
AR
Quality Dialysis Care (Sg Besar)
Quality Dialysis Care (Sg. Petani Selatan)
Quality Dialysis Care (Sg. Petani Utara)
Quality Dialysis Care (Sg. Siput)
Quality Dialysis Care (Tanjung Karang)
Quality Dialysis Care (Wangsa Maju)
Queen Elizabeth Hospital
Raja Perempuan Zainab II Hospital
Raja Permaisuri Bainun Hospital
Ranau Hospital
Raub Dialysis Centre
Raub Hospital
Rawatan Dialisis Bukit Tinggi
Rejang Medical Centre
Renal Associates
Renal Care (Ipoh Specialist)
Renal Care (Kedah)
Renal Care Dialysis Services
Renal Dialysis Centre
Renal Life Dialysis Centre
Renal Link (Penang)
Renal Therapy Services
Renal-Link (Kelantan)
S.P. Menon Dialysis Centre (Klang)
S.P. Menon Dialysis Centre (Kuala Lumpur)
S.P. Menon Dialysis Centre (Petaling Jaya)
Saratok Hospital
Sarawak General Hospital
Sarikei Hospital
Sayang Dialysis Selayang
Seberang Jaya Hospital
Seberang Perai (Bagan)
Segamat Hospital
Selama Hospital
Selayang Hospital (Paed)
Selayang Hospital
Semporna Hospital
Sentosa Medical Centre
Serdang Hospital
Seremban Specialist Hospital
Seri Benut Dialysis
Seri Manjung Hospital
Serian Hospital
Setiu Hospital
Sg Siput Hospital
Sibu Hospital
Sibu Kidney Foundation
Sik Hospital
Sime Darby Medical Centre Parkcity
Sime Darby Medical Centre Subang Jaya
Simunjan Hospital
Sinar Haemodialysis (Batu Pahat)
Yes
No
No
Yes
No
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
No
Yes
No
No
No
No
Yes
Yes
No
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
No
Yes
Yes
No
No
No
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
>=80%
=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
=80%
=80%
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
Haemodialysis Centre
CC#
Sinar Haemodialysis (Parit Raja)
Sinar Hemodialisis
Sipitang Hospital
SJ Dialysis Centre (Bidor)
SJ Dialysis Centre (Ipoh)
SJ Dialysis Centre (Seberang Jaya)
SJAM_KPS Pusat Hemodialisis Centre 10 (Bintulu)
SJAM_KPS Pusat Hemodialisis Centre 15 (Ipoh)
SJAM-KPS Haemodialysis Centre 1 (Raja Muda Musa)
SJAM-KPS Haemodialysis Centre 11 (Shah Alam)
SJAM-KPS Haemodialysis Centre 12 (Balakong)
SJAM-KPS Haemodialysis Centre 2 (Klang)
SJAM-KPS Haemodialysis Centre 3 (Banting)
SJAM-KPS Haemodialysis Centre 5 (Rawang)
SJAM-KPS Haemodialysis Centre 6 (Kuala Selangor)
SJAM-KPS Haemodialysis Centre 8 (Sibu)
SJAM-KPS Haemodialysis Centre 9 (Raub)
SJAM-KPS Pusat Hemodialisis Tasik Puteri
Slim River Hospital (Tanjong Malim)
Smartcare Dialysis Centre (Subang Jaya)
Smartcare Dialysis Clinic (Cheras)
Sri Aman Hospital
Sri Kota Medical Centre
Subang Dialysis Centre
Sultan Abdul Halim Hospital
Sultan Haji Ahmad Shah Hospital
Sultan Ismail Hospital (Paed)
Sultan Ismail Hospital
Sultanah Aminah Hospital
Sultanah Bahiyah Hospital
Sultanah Nur Zahirah Hospital
Sungai Bakap Hospital
Sungai Buloh Hospital
Sunway Medical Centre (2)
Sunway Medical Centre
Superkids Trinity-NKF Dialysis Centre
Suria Dialysis Centre (Temerloh)
Suriya Dialysis Centre
Systemic Dialysis Centre (2)
Systemic Dialysis Centre
Syukur Dialisis (Petaling Jaya)
Syukur Dialisis (Puchong)
Syukur Dialisis (Shah Alam)
Taiping Hospital
Taiping Medical Centre
Tambunan Hospital
Tampin Hospital
Tan Sri Muhyiddin Charity Dialysis Centre
Tanah Merah Hospital
Tangkak Hospital
Tangkak Lions Renal Centre
Tanjung Karang Hospital
No
No
Yes
Yes
No
No
No
Yes
Yes
Yes
No
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
No
No
Yes
No
Yes
No
No
No
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Note: *=Ceased 2013, CC# =Award of Compliance Certificate, AR=annual treatment return
xii
AR
=80%
=80%
>=80%
>=80%
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
PARTICPATING HAEMODIALYSIS CENTRES 2013 (con’t)
Haemodialysis Centre
CC#
AR
Tapah Hospital
Tawau Hospital
Teluk Intan Hospital
Temenggong Seri Maharaja Tun Ibrahim Hospital
Tenang Haemodialysis Centre
Tenang Haemodialysis Jasin
Tengku Ampuan Afzan Hospital (Paed)
Tengku Ampuan Afzan Hospital
Tengku Ampuan Jemaah Hospital
Tengku Ampuan Rahimah Hospital
Tengku Anis Hospital
Tenom Hospital
The Kidney Dialysis Centre (1)
The Kidney Dialysis Centre (2)
The Nayang-NKF Dialysis Centre
The Penang Community HD Society
The Rotary HD Centre (Johor Bahru)
Timberland Medical Centre
Total Kidney Care Haemodialysis
TSC Renal Care
Tuanku Ampuan Najihah Hospital
Tuanku Fauziah Hospital
Tuanku Ja'afar Hospital (Paed)
Tuanku Ja'afar Hospital
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
No
Yes
Yes
Yes
Yes
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
Haemodialysis Centre
CC#
Tuaran Hospital
Tulips Dialysis Centre
Tumpat Hospital
Tung Shin Hospital & Yayasan Nanyang Press
Tung Shin Hospital
Unit Hemodialisis Komuntiti Kodiang
Universiti Kebangsaan Malaysia Bangi
Universiti Sains Malaysia Hospital
University Malaya Medical Centre
University Malaya Specialist Centre
Woh Peng Cheang Seah
Yakin Jaya Haemodialysis
Yan Hospital
Yayasan Dialysis Pendidikan Akhlak Perak-NKF Ipoh
Yayasan Kebajikan SSL Puchong
Yayasan Kebajikan SSL
Yayasan Pembangunan Keluarga Johor-NKF
Yayasan Rotary Kluang
YKN Dialisis (Kuala Lumpur)*
YKN Dialisis Kota Bharu
YKN Dialisis Kuala Pilah
YKN Dialisis Rompin
Zhi En Dialysis Centre
Yes
Yes
Yes
Yes
Yes
Yes
Yes
No
No
No
Yes
No
No
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
No
AR
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
=80%
>=80%
>=80%
>=80%
PARTICIPATING PD CENTRES 2013
Peritoneal dialysis centre
CC#
96 Hospital Angkatan Tentera (Lumut)
Besut Hospital
BP Renal Care (Batu Pahat)*
Duchess of Kent Hospital
Hospital Pakar Sultanah Fatimah (Muar)
Kemaman Hospital
Kuala Lumpur Hospital (Paed.)
Kuala Lumpur Hospital
Likas Hospital (Paed)
Melaka Hospital
Normah Medical Specialist Centre
Pantai Hospital Batu Pahat
Prince Court Medical Centre
Pulau Pinang Hospital (Paed)
Pulau Pinang Hospital
Pusat Perubatan Universiti Kebangsaan Malaysia
Queen Elizabeth Hospital
Raja Perempuan Zainab II Hospital
Raja Permaisuri Bainun Hospital
No
No
No
No
Yes
No
Yes
Yes
No
Yes
Yes
No
No
Yes
Yes
No
Yes
Yes
Yes
AR
=80%
No AR
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
Peritoneal dialysis centre
CC#
Renal Dialysis Centre
Sarawak General Hospital
Selayang Hospital (Paed)
Selayang Hospital
Serdang Hospital
Sultan Haji Ahmad Shah Hospital
Sultan Ismail Hospital (Paed)
Sultanah Aminah Hospital
Sultanah Bahiyah Hospital
Sultanah Nur Zahirah Hospital
Tawau Hospital
Tengku Ampuan Afzan Hospital (Paed)
Tengku Ampuan Afzan Hospital
Tengku Ampuan Rahimah Hospital
Tuanku Ja'afar Hospital (Paed)
Tuanku Ja'afar Hospital
Universiti Sains Malaysia Hospital
University Malaya Medical Centre
No
Yes
No
Yes
Yes
No
Yes
Yes
Yes
No
No
No
No
Yes
No
Yes
No
Yes
Note: *=Ceased 2013, CC# =Award of Compliance Certificate, AR=annual treatment return
xiii
AR
No AR
>=80%
=80%
>=80%
=80%
>=80%
>=80%
=80%
>=80%
=80%
>=80%
>=80%
=80%
PARTICIPATING TRANSPLANT FOLLOW-UP CENTRES 2013
Renal transplant follow-up centre
CC#
AR
Assunta Hospital
Bintulu Hospital
Duchess of Kent Hospital
Dungun Hospital
Fan Medical Renal Clinic
Hospital Enche' Besar Hajjah Khalsom
Hospital Sultanah Nora Ismail
Klinik Dr Choo & Liew
KPJ Sabah Specialist Hospital
Kuala Lumpur Hospital (Paed)
Kuala Lumpur Hospital
Labuan Hospital
Mahkota Medical Centre
Melaka Hospital
Mersing Hospital
Miri Hospital
Pakar Sultanah Fatimah Muar Hospital
Pontian Hospital
Prince Court Medical Centre
Pulau Pinang Hospital
Pusat Perubatan Universiti Kebangsaan Malaysia
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
>=80%
>=80%
>=80%
>=80%
No AR
>=80%
>=80%
>=80%
No AR
>=80%
>=80%
>=80%
No AR
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
Renal transplant follow-up centre
CC#
Queen Elizabeth Hospital
Raja Perempuan Zainab II Hospital
Raja Permaisuri Bainun Hospital
Sarawak General Hospital
Segamat Hospital
Selayang Hospital
Serdang Hospital
Sibu Hospital
Sultan Ismail Hospital (Paed)
Sultan Ismail Pandan Hospital
Sultanah Aminah Hospital
Sultanah Bahiyah Hospital
Sultanah Nur Zahirah Hospital
Taiping Hospital
Tan Medical Renal Clinic
Tawau Hospital
Tg. Ampuan Afzan Hospital
Tg. Ampuan Rahimah Hospital
Tuanku Ja'afar Hospital
Universiti Sains Malaysia Hospital
University Malaya Medical Centre
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Note: *=Ceased 2013, CC# =Award of Compliance Certificate, AR=annual treatment return
xiv
AR
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
CONTRIBUTING AUTHORS
CHAPTER TITLE
1
2
3
4
5
6
ALL RENAL REPLACEMENT
THERAPY IN MALAYSIA
DIALYSIS IN MALAYSIA
DEATH AND SURVIVAL ON DIALYSIS
QOL AND REHABILITATION OUTCOMES
ON DIALYSIS PATIENT IN MALAYSIA
PAEDIATRIC RENAL REPLACEMENT
THERAPY
MANAGEMENT OF ANAEMIA
IN DIALYSIS PATIENTS
AUTHORS
Kuala Lumpur Hospital
Ong Loke Meng
Pulau Pinang Hospital
Goh Bak Leong
Serdang Hospital
Lee Day Guat
National Renal Registry
Goh Bak Leong
Serdang Hospital
Lim Yam Ngo
Kuala Lumpur Hospital
Ong Loke Meng
Penang Hospital
Ghazali B Ahmad
Kuala Lumpur Hospital
Lee Day Guat
National Renal Registry
Wong Hin Seng
Selayang Hospital
Ong Loke Meng
Penang Hospital
Liu Wen Jiun
Sultanah Aminah Hospital
Chew Thian Fook
Seremban Specialist Hospital
Christopher Lim Thiam Seong
University Putra Malaysia
Tan Wee Ming
Sunway Medical Centre
Yia @ Yeow Hua Jern
Hospital Pakar Sultanah Fatimah
Lee Ming Lee
Tuanku Ja'afar Hospital
Lim Yam Ngo
Kuala Lumpur Hospital
Lynster Liaw Chiew Tung
Penang Hospital
Susan Pee
Sultan Ismail Hospital
Wan Jazilah Wan Ismail
Selayang Hospital
Yap Yoke Chin
Kuala Lumpur Hospital
Philip N. Jeremiah
KPJ Ampang Puteri Specialist Hospital
Bee Boon Cheak
Selayang Hospital
Ghazali B Ahmad
Kuala Lumpur Hospital
Lim Soo Kun
University Malaya Specialist Centre
Zawawi B Nordin
Winnie Chee Siew Swee
Sultanah Nur Zahirah Hospital
Pusat Perubatan Universiti Kebangsaan
Malaysia
International Medical University
Tilakavati Karupaiah
Faculty of Allied Health Sciences University
Kebangsaan Malaysia
Abdul Halim B Abdul Gafor
7
8
9
10
11
12
13
NUTRITIONAL STATUS ON DIALYSIS
BLOOD PRESSURE CONTROL AND
DYSLIPIDAEMIA
CHRONIC KIDNEY DISEASE MINERAL AND BONE DISORDERS
HEPATITIS ON DIALYSIS
HEAEMODIALYSIS PRACTICES
CHRONIC PERITONEAL
DIALYSIS PRACTICES
RENAL TRANSPLANTATION
INSTITUTIONS
Lim Yam Ngo
Koh Keng Hee
Sarawak General Hospital
Ahmad Fauzi B Abd Rahman
Puteri Specialist Hospital
S. Prasad Menon
Sime Darby Medical Centre Subang Jaya
Hooi Lai Seong
Sultanah Aminah Hospital
Lee Wan Tin
Sime Darby Medical Centre Subang Jaya
Sunita Bavanandan
Kuala Lumpur Hospital
Kok Lai Sun
Bukit Mertajam Hospital
Rozina Bt Ghazalli
Pulau Pinang Hospital
Ching Chen Hua
Sultanah Bahiyah Hospital
Fan Kin Sing
Gleneagles Intan Medical Centre
Liew Yew Fong
Pulau Pinang Hospital
Clare Tan Hui Hong
Sarawak General Hospital
Teo Sue Mei
Putri Haemodialysis Centre (Ipoh)
Chow Yok Wai
Pantai Air Keroh Hospital
Thiruventhiran Thilaganathan
Sunway Medical Centre
Ng Eng Khim
TAR University
Shahnaz Shah Firdaus Khan
Tengku Ampuan Rahimah Hospital
Tan Chwee Choon
Tengku Ampuan Rahimah Hospital
Norleen Bt Zulkarnain Sim
Tengku Ampuan Rahimah Hospital
Rafidah Abdullah
Sultan Haji Ahmad Shah Hospital
Sunita Bavanandan
Kuala Lumpur Hospital
Lily Mushahar
Tuanku Ja'afar Hospital
Anita Bhajan Manocha
Hospital Seberang Jaya
Rosnawati Yahya
Kuala Lumpur Hospital
Goh Bak Leong
Serdang Hospital
Fan Kin Sing
Gleneagles Intan Medical Centre
S. Prasad Menon
Sime Darby Medical Centre Subang Jaya
Tan Si Yen
Prince Court Medical Centre
Wong Hin Seng
Rohan Malek Bin Dato' Dr. Johan
Selayang Hospital
Selayang Hospital
xv
FOREWORD
Despite many uncertainties in many areas in health sector in this country, the production of the Annual Report of the Malaysian Dialysis
and Transplant Registry will be an exception as uninterrupted annual publication now enters its 21st year of existence. Notwithstanding
the challenges associated with the ever growing number of incident and prevalent patients with CKD5D and CKDT as well as the number
of SDPs which totaled 780 last year, the dedication and enthusiasm of various individuals and parties did ensure that we reach the readers
and MDTR users once again in a timely manner.
As usual, the latest MDTR reports are expected to be used and cited by many interested parties including clinicians, health industry, policy
makers, health planners, health regulators and even lawmakers. At the international front, MDTR data made its way, as in its past years, to
USRDS and the Global Report on Transplantation for the World Health Organisation. For these reasons, it becomes a paramount importance
for the NRR to ensure that the data reported in the annual MDTR achieve a high degree of credibility. Even though data submission by the
data providers started on voluntary basis and remained so for many years, the requirements under the Private Healthcare and Facilities
Regulations 2006 and the Accreditation of Haemodialysis Services by the Malaysian Society for Quality in Health, Malaysia 2013, made it
incumbent on the 600 odd haemodialysis units in the country, both public and private, to submit various data in the form of Annual Returns,
Patient and Outcome Notification and Annual Surveys to the registry.
In the near future, it is expected that some form of checks and audits will be performed on the data submitted by the SDPs to verify their
accuracy. On a longer term basis, it is possible that further transparency will be demanded by the public as well as the funding agencies
to get the dialysis centres’ performance to be published and the respective centres be identified openly for comparisons. This practice is
already taking place in several European countries and is just a matter of time before its application locally.
On behalf of the registry Advisory Committee, I wish to express my utmost appreciation to all the financial sponsors, in particular Roche
Malaysia Sdn Bhd, which had shown their continued generosity and commitment to support NRR. The Source Data Providers who had
diligently and consistently submit useful and quality data annually, continue to encourage us to persist with the registry works despite all
its challenges. The Expert Committee members who persevered in their volunteerism provided important and relevant commentaries on
the important observations associated with the registry data and trends remain an all important part of the registry contributors. The new
Editorial Board led jointly by Dr. Goh Bak Leong and Dato’ Dr. Ong Loke Meng had been able to take on the challenges to get the` jobs done’
and completed. The unsurpassed commitments and perseverance of the NRR administrators led by Staff Nurse Lee Day Guat will not go
unnoticed, worthy of special mention and are definitely appreciated.
Thank you all.
Datuk Dr. Ghazali Ahmad
Chairman
Advisory Committee 2012-2014
National Renal Registry
xvi
CONTENTS
Acknowledgement
NRR Advisory Board Members
About The Malaysian Dialysis and Transplant Registry (MDTR
Participating Haemodialsyis Centres
Participating Chronic Peritoneal Dialsysis Centres
Participating Transplant Follow-up Centres
Contributing Editors
Foreword
Chapters & Sections
List of Tables
List of Figures
Executive Summary
Abbrevation
iii
iv
v
vii - xiii
xiii
xiv
xv
xvi
xvii - xiv
xx - xxv
xxvi - xxx
xxxi
xxxii
CHAPTER 1:
ALL RENAL REPLACEMENT THERAPY IN MALAYSIA
1
SECTION 1.1:
STOCK AND FLOW
2
SECTION 1.2:
TREATMENT PROVISION RATE
3
CHAPTER 2:
DIALYSIS IN MALAYSIA
5
SECTION 2.1:
PROVISION OF DIALYSIS IN MALAYSIA (Registry report)
6
2.1.1:
Dialysis treatment provision
6
2.1.2:
Geographic distribution
7
2.1.3:
Gender distribution
7
2.1.4:
Age distribution
8
2.1.5:
Method and location of dialysis
9
2.1.6:
Funding for dialysis treatment
10
2.1.7:
Distribution of dialysis patients by sector
11
2.1.8:
Primary renal disease
11
DIALYSIS PROVISION IN MALAYSIA (Centre survey report)
12
2.2.1:
Growth in dialysis in Malaysia by state and sector
12
2.2.9:
Manpower in dialysis centres
28
CHAPTER 3:
DEATH AND SURVIVAL ON DIALYSIS
31
SECTION 3.1:
DEATH ON DIALYSIS
32
SECTION 3.2:
PATIENT SURVIVAL ON DIALYSIS
34
3.2.1:
Patient survival by type of dialysis modality
34
3.2.2:
Patient survival by year of starting dialysis
36
3.2.3:
Patient survival by age at starting dialysis
37
3.2.4:
Patient survival by diabetic status
38
SURVIVAL OF INCIDENCE PATIENTS BY CENTRE
38
3.3.1:
Survival of incident haemodialysis patients 2004-2012 by centre
38
3.3.2:
Survival of incident PD patients by centre
40
ADJUSTED MORTALITY OF DIALYSIS PATIENT
41
3.4.1:
Adjusted hazard ratio for mortality of dialysis patients
41
3.4.2:
Adjusted hazard ratio for mortality of haemodialysis patients
44
3.4.3:
Adjusted hazard ratio for mortality of peritoneal dialysis patients
46
3.4.4:
Risk adjusted mortality rate for haemodialysis patients by haemodialysis centres
48
3.4.5:
Risk Adjusted Mortality Rate by PD centres
48
SECTION 2.2:
SECTION 3.3:
SECTION 3.4:
xvii
CONTENTS
(CONT.)
QUALITY OF LIFE AND REHABILITATION OUTCOMES OF DIALYSIS PATIENTS IN MALAYSIA
49
SECTION A:
QoL INDEX SCORE
50
SECTION B:
WORK RELATED REHABILITATION
52
PAEDIATRIC RENAL REPLACEMENT THERAPY
53
SECTION A:
RRT PROVISION FOR PAEDIATRIC PATIENTS
54
SECTION B:
DISTRIBUTION OF PAEDIATRIC DIALYSIS PATIENTS
56
SECTION C:
PRIMARY RENAL DISEASE
58
SECTION D:
TYPES OF RENAL TRANSPLANTATION
58
SECTION E:
SURVIVAL ANALYSIS
59
SECTION F:
HAEMODIALYSIS PRACTICE
61
SECTION G:
ANAEMIA TREATMENT
62
CHAPTER 6:
MANAGEMENT OF ANAEMIA IN DIALYSIS PATIENTS
65
SECTION 6.1:
TREATMENT FOR ANAEMIA IN PATIENT ON
THE MALAYSIAN DIALYSIS &
TRANSPLANT REGISTRY 2013
Sponsors:
Malaysian Society Of Nephrology
Association Of Dialysis Medical Assistants And Nurses
The National Renal Registry Is Funded With Grants From:
The Ministry Of Health Malaysia
Roche
AIN Medicare
Baxter Healthcare
Fresenius Medical Care
Lucenxia
i
June 2014
© National Renal Registry, Malaysia
ISSN 1675-8862
Published by:
The National Renal Registry
Malaysian Society of Nephrology
Suite 1604, Plaza Permata
6, Jalan Kampar
50400 Kuala Lumpur
Malaysia
Telephone. : (603) 4045 8636
Direct Fax : (603) 4042 7694
: [email protected]
Web site : http://www.msn.org.my
Important information:
1.
This report is copyrighted. However it may be freely reproduced without the permission of the National Renal
Registry. Acknowledgment would be appreciated. Suggested citation is: BL Goh, LM Ong, YN Lim, (Eds) Twenty
First Report of the Malaysian Dialysis and Transplant 2013, Kuala Lumpur 2014
2.
This report is also published electronically on the website of the National Renal Registry at: http://www.msn.org.my
3.
Hard copies of the report can be made available with donation of RM100.00 per copy to defray the cost of printing.
ii
ACKNOWLEDGEMENTS
The Malaysian Dialysis and Transplant Registry of the National Renal Registry would
like to thank each and everyone who have in one way or another contributed to
the success of the Malaysian Dialysis and Transplant Registry.
In particular we would like to thank the following:
The Nephrologists, physicians and staff of the Dialysis and
Transplant follow-up centres: thank you for participating in the Registry.
The success of the Registry depends on you.
The Ministry of Health, Malaysia for financial support and
other support seen and unseen;
The Clinical Research Centre, in particular Dr Goh Pik Pin and Dr Jamaiyah
for their tireless effort in supporting the work of registries.
For their generous support:Roche
AIN Medicare
Baxter Healthcare
Fresenius Medical Care
Lucenxia
iii
NRR ADVISORY COMMITTEE MEMBERS
2012 to 2014
MEMBERS:
MSN APPOINTMENT:
FACILITIES
Datuk Dr. Ghazali Ahmad
Chairman
Hospital Kuala Lumpur
Prof. Dr. Abdul Halim Abdul Gafor
University representative
University Kebangsaan Malaysia Medical Centre
Dr. S. Prasad Menon
Private sector representative
Sime Darby Medical Centre Subang Jaya
Dato’ Dr. Ong Loke Meng
CRC representative
Hospital Penang
Mr. Tam Chong Chiang
ADMAN representative
Hospital Tengku Ampuan Afzan, Kuantan
Dr. Lim Yam Ngo
MDTR sub-committee Chairperson
Hospital Kuala Lumpur
Dr. Wong Hin Seng
eMOSS sub-committee Chairperson
Hospital Selayang
Dr. Rosnawati Yahya
MRRB sub-committee Chairperson
Hospital Kuala Lumpur
Dr. Goh Bak Leong
MDTR Editor
Hospital Serdang
Dr. Rafidah Abdullah
Honorary MSN Treasurer
Sultan Haji Ahmad Shah Hospital
STATISTICIAN
Jasmine Chew Sze Ming
NRR MANAGER
Lee Day Guat
Choo Cheh Loo
CLINICAL RESEARCH ASSOCIATE
Suhazelini Ali
iv
A
DIAL
LYSIS AND
ABOUT THE MALAYSIAN
DIALYSIS
TRANSPLANT REGISTRY
GISTRY (MDTR)
(
(MDTR)……..
)
The Malaysia Dialysis and Transplant Registry (MDTR) collects information on patients with end stage renal disease (ESRD) on renal
replacement therapy (RRT) in Malaysia.
Objectives:
The objectives of the registry are as follows:
1. Describe the natural history of ESRD. The registry shall describe the characteristics of patients with ESRD, its management,
and patient survival and quality of life outcomes with treatment; and shall describe variation thereof across different groups,
healthcare sectors or geographic regions, and its secular trend over time in Malaysia.
2.
Determine effectiveness of treatments for ESRD. The registry shall determine clinical effectiveness and cost effectiveness
of treatments of ESRD in real-world clinical practices in Malaysia.
3.
Monitor safety and harm of products and services used in the treatment of ESRD. The registry shall serve as an active
surveillance system for the occurrence of unexpected or harmful events for products and services.
4.
Evaluating access to and quality of treatment services for ESRD. The registry shall assess differences between providers
or patient populations based on performance measures that compare treatments provided or outcomes achieved with “gold
standards” (e.g., evidence-based guidelines) or comparative benchmarks for specific health outcomes (e.g., risk-adjusted
survival rates). Such programs may be used to identify disparities in access to care, demonstrate opportunities for improvement,
establish differentials for payment by third parties, or provide transparency through public reporting.
5.
To maintain the national renal transplant waiting list electronically – the eMOSS or electronic Malaysian Organ Sharing
System. The dialysis registry shall maintain and update patients on dialysis who do not have contraindications to kidney
transplantation onto the national renal transplant waiting list according to published agreed criteria. This list is available on the
web for ready access by the transplant physicians any time a deceased kidney becomes available.
Registry design:
This is a multi-center, observational cohort study designed to evaluate the health outcomes of patients with ESRD undergoing
treatment at participating clinical centres. Patient inclusion criterion is deliberately broad and shall include any patient with a
confirmed diagnosis of ESRD.
There is no prescribed study visits. Patient shall attend the clinical site as and when required per the standard of care at the site.
Required data shall be collected as they become available.
•
A clinical site shall notify all new patients to the registry, and shall continue to do so until the termination of the registry. Patients
shall be follow-up for life.
•
Participation. Site shall notify the patients’ treatment to the registry in a calendar year of its participation. A site shall similarly
notify patients during each year of its participation in the registry.
Registry study population:
The registry study population consists of male or female patients with ESRD to be recruited from participating sites in Malaysia.
Participation in this study is voluntary. However, in accordance with the Private Health-care Facilities Act 1998 (AKTA 586), all
dialysis health facility are required to submit data to the Malaysian Dialysis and Transplant Registry (MDTR).
v
All clinical centres or sites that satisfy the following selection criteria will be invited to participate:
This registry is opened to all clinical sites that provide RRT services for patients with ESRD in Malaysia.
Each site shall have a Principal Investigator who is also a licensed physician / Surgeon and a qualified professional experienced
with ESRD management.
Each site shall appoint a Site Coordinator (SC). The SC is the person at the participating clinical site who is responsible for all
aspects of registry management and data collection at site, and who will liaise with the Clinical Registry Manager (CRM) and
Clinical Registry Assistant (CRA) at the Registry Coordinating Centre (RCC).
Each site shall accept responsibility for data collection, as well as for ensuring proper record keeping and registry document
filing.
Each site shall agree to comply with the registry procedures and shall be willing to be subjected to ongoing review of data by
CRM or CRA or other representative of MDTR. This may include one or more site visits by prior arrangement
Patient eligibility criteria:
•
All new patients with ESRD undergoing treatment at a participating clinical site are eligible for entry into the registry.
•
In addition, a site may opt to enter existing patients on follow-up at the site into the registry.
Registry data:
The data elements to be collected by the registry shall be relevant and reliable with modest burden to sites, shall comply with
existing data standard where this exists, shall be compatible with established data set used by other existing registries, and shall
employ standard terminology (dictionary) where available.
Two datasets are defined:
•
Core dataset: These are data elements that are needed to address the key questions for which the registry was created.
•
Non-core dataset: these are speculative data elements included to provide an opportunity to generate hypotheses or to explore
other subsidiary questions not of primary interest to the registry.
The data domains and related specific data elements to be collected by this registry is tabulated below:
A
Identifier
Name, NRIC number, Other identifying document numbers, Address, Contact numbers
B
Demographics
Age, Sex, Ethnicity, Educational attainment, Occupation, Household Income group, Weight
& Height, Use of tobacco, Funding for Treatment
C
Medical history
Medical history/ comorbidities, Family history
D
ESRD diagnosis
Date of first diagnosis, Date re-entering each RRT.
E
Laboratory investigations
Date & time of tests, Blood chemistry, Hematology, Serology
F
Treatment
Modalities of RRT- haemodialysis, peritoneal dialysis; treatment of other uraemic
complications; kidney transplantation
G
Outcomes
Patient survival; death, date of death, cause of death
Quality of Life/ Work rehabilitation status
H
Economics
Source of funding for dialysis treatment, and immunosuppressive drug treatment for
transplantation
J
Healthcare provider
characteristics
Sector providing dialysis treatment, (private, public or NGO),
vi
PARTICPATING HAEMODIALYSIS CENTRES 2013
Haemodialysis Centre
CC#
AR
801 Rumah Sakit Angkatan Tentera (Kuching)
No
=80%
96 Hospital Angkatan Tentera (Lumut)
Afiat Dialysis Centre
No
No
=80%
Aiman Dialysis Centre
Yes
>=80%
Al-Islam Specialist Hospital
No
=80%
=80%
Alor Setar Dialysis Centre
Yes
>=80%
AMD Rotary (Penang)
Ampang Hospital
Yes
Yes
>=80%
>=80%
Anggun Dialysis Centre
No
No AR
Apex Club of Klang-NKF Charity Dialysis Centre
Yes
>=80%
Asia Renal Care (Sg Petani)
Assunta Hospital
No
Yes
=80%
Bakti-NKF Dialysis Centre
Yes
>=80%
Balik Pulau Hospital
Yes
>=80%
Baling Hospital
Bangi Dialysis Centre
No
No
=80%
Batu Pahat Rotary
Bau Hospital
Yes
Yes
>=80%
>=80%
BBA (Butterworth) Dialysis Centre
No
>=80%
BBA (Kota Kinabalu) Dialysis Centre
Yes
>=80%
BBA (Puchong) Dialysis Centre
BBA (Tawau) Dialysis Centre
Yes
No
>=80%
=80%
Beluran Hospital
Bentong Hospital
Yes
Yes
>=80%
>=80%
Bertam Dialysis Centre
No
No AR
Besut Hospital
Yes
>=80%
Betong Hospital
Bintulu Hospital
Yes
Yes
>=80%
>=80%
Bintulu Specialist Hospital
No
>=80%
BP Renal Care (Batu Pahat)
No
=80%
=80%
BP Renal Care Simpang Renggam
No
=80%
>=80%
Buddhist Tzu Chi Dialysis Centre (Kedah)
Yes
>=80%
Buddhist Tzu Chi HD Centre (Penang)
Yes
>=80%
Bukit Mertajam Hospital
C.S. Loo Kidney & Medical Specialist Centre
Yes
No
>=80%
=80%
Haemodialysis Centre
CC#
Carlatan Dialysis Centre (Bukit Mertajam)
Carlatan Dialysis Centre (Sungai Petani)
Changkat Melintang Hospital
Charis-NKF Dialysis Centre
Che Eng Khor Centre
Cheras Dialysis Centre
CHKMUS-MAA Medicare Charity
Dalat Hospital
Damai Medical & Heart Clinic
Damansara Specialist Hospital
Davita Seri Setia Dialysis Centre
DEMC Dialysis Centre
D'kasih Hemodialisis
DSS Dialysis Centre (Rawang)
Duchess of Kent Hospital
Dungun Hospital
Eagles Dialysis Centre
EAM Dialysis Centre
Fatimah Hospital
Fitra Med
Fo Yi NKF Dialysis Centre (1)
Fo Yi NKF Dialysis Centre (2)
Gerik Hospital
Giat Kurnia Dialysis Centre (Nilai)
Gleneagles Medical Centre
Golden Age Dialysis Centre
Gua Musang Hospital
Haemodialysis Association Klang
Haemodialysis Bestari Kampar
Happy Kid Nees Dialysis Centre
Harmoni Dialysis (Damansara)
Harmoni Dialysis (Sg Long)
Harmony Sofia Dialysis Centre
Healthcare Dialysis Centre
Hemodialisis Yayasan Veteran ATM (S Kembangan)
Hope Haemodialysis Society Ipoh
Hospital Angkatan Tentera Tuanku Mizan
Hospital Daerah Daro
Hospital Enche' Besar Hajjah Khalsom
Hospital Pakar Sultanah Fatimah (Muar)
Hospital Queen Elizabeth II
Hospital Sultanah Hajjah Kalsom
Hospital Sultanah Nora Ismail
Hudaz Dialysis Centre
Hudaz Tunjong Dialysis Centre
Hulu Terengganu Hospital
Ibnu Al-Nafis Dialysis Centre
Iman Dialysis
Imercy Dialysis Centre
Island Hospital
Jasin Hospital
JB Lions MAA-Medicare Charity Dialysis Centre (1)
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
No
No
No
No
No
Yes
Yes
No
No
Yes
Yes
Yes
No
No
No
No
No
Yes
No
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
No
Yes
Yes
No
No
No
Yes
Yes
Note: *=Ceased 2013, CC# =Award of Compliance Certificate, AR=annual treatment return
vii
AR
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
=80%
=80%
=80%
>=80%
>=80%
>=80%
=80%
>=80%
No AR
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
=80%
>=80%
PARTICPATING HAEMODIALYSIS CENTRES 2013 (con’t)
Haemodialysis Centre
CC#
AR
JB Lions MAA-Medicare Charity Dialysis Centre (2)
Jelebu Hospital
Jeli Hospital
Jempol Hospital
Jengka Hospital
Jerantut Hospital
Jerteh Dialysis Centre
JJ Lions Dialysis Centre
Johor Quarries Association Dialysis Centre
Johor Specialist Hospital
Kaizenbros Dialysis Centre
Kajang Hospital
Kampar Hospital
Kanowit Hospital
Kapit Hospital
KAS-Rotary-NKF
Kay Tee Dialisis
Kelana Jaya Medical Centre*
Keluarga Bahagia Haemodialisis
Kemaman Hospital
Keningau Hospital
Kepala Batas Hospital
Klinik Waqaf An-Nur (Ijok)
Kota Belud Hospital
Kota Kinabatangan Hospital
Kota Marudu Hospital
Kota Tinggi Hospital
KPJ Ampang Puteri Specialist Hospital
KPJ Kajang Specialist Hospital
KPJ Klang Specialist Hospital
KPJ Kluang Utama Specialist Hospital
KPJ Penang Specialist Hospital
KPJ Puteri Specialist Hospital
KPJ Sabah Specialist Hospital
KPJ Selangor Specialist Hospital
Kuala Kangsar Hospital
Kuala Krai Hospital
Kuala Kubu Bharu Hospital
Kuala Lipis Hospital
Kuala Lumpur Hospital (Paed.)
Kuala Lumpur Hospital
Kuala Lumpur Lions Renal Centre
Kuala Nerang Hospital
Kuantan Clinical Diagnostic Centre
Kuantan Dialysis Centre
Kuantan Medical Centres
Kuantan Specialist Centre
Kuching Specialist Hospital
Kudat Hospital
Kulim Haemodialysis (CS Tan)
Kulim Hospital
Labuan Hospital
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Yes
No
No
No
Yes
No
Yes
No
Yes
Yes
Yes
Yes
No
Yes
No
Yes
No
No
No
No
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
No
No
No
No
Yes
Yes
No
Yes
Yes
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
=80%
=80%
No AR
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
Haemodialysis Centre
CC#
Lahad Datu Hospital
Lam Wah Ee Hospital
Langkawi Hospital
Lawas Hospital
Likas Hospital (Paed)
Likas Hospital
Lim Boon Sho Dialysis Centre
Limbang Hospital
Lions Club Kota Budaya Dialysis Centre
Lipis Dialysis Centre
Loh Guan Lye Specialist Centre
Lundu Hospital
MAA Charity Dialysis (Kota Bharu)
MAA-Medicare Charity (Butterworth)
MAA-Medicare Charity (Kuala Lumpur)
MAA-Medicare Charity (Mentakab)
MAA-Medicare Charity (Sg Besi)
MAA-Medicare Charity (Teluk Intan)
MAA-Medicare Kidney (Kajang)
Machang Hospital
Mahkota Medical Centre
MAIS Dialysis (Melawati)
Marudi Hospital
MB Star Rawatan Dialisis (Hutan Melintang)
MB Star Rawatan Dialisis (Kelana Jaya)
MB Star Rawatan Dialisis
Melaka Hospital
Mentakab Haemodialysis Unit
Mersing Hospital
Mersing Rotary Centre
Metro Specialist Hospital
Miri Hospital
Miri Red Crescent Dialysis Centre
Muadzam Shah Hospital
Muar Dialysis
Muar Lions Renal Centre
Muhibah Renal Care
Mukah Hospital
Mynephro Dialysis Sdn Bhd
Mysha Qasih Dialysis Centre
Nefrol I-Care
NEPH Dialysis Centre Sdn Bhd
Neph Sdn Bhd (Sg Ara)
Nephcare Dialysis Centre
Nephrolife Dialysis Centre
Nobel Dialysis Centre Tuaran
Nobel Dialysis Centre
Normah Medical Specialist Centre
Northern Dialysis Centre
Nucare Dialysis Centre
Nur Dialysis Centre
Nur Iman Dialysis Pahang
No
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
No
No
No
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
No
No
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
Note: *=Ceased 2013, CC# =Award of Compliance Certificate, AR=annual treatment return
viii
AR
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
PARTICPATING HAEMODIALYSIS CENTRES 2013 (con’t)
Haemodialysis Centre
Pahang Buddhist Association
Pakar Perdana Hospital
Pantai Air Keroh Hospital
Pantai ARC Dialysis Services
Pantai Hospital Ampang
Pantai Hospital Penang
Pantai Hospital Sungai Petani
Papar Hospital
Parit Buntar Hospital
Pasir Mas Hospital
Pekan Hospital
Pelangi Haemodialysis Centre
Pemodalan Negeri Selangor Dialisis Centre
Penang Adventist Hospital
Penang Caring Dialysis Society
Persada Dialysis Centre
Persatuan Amal Chin Malaysia Barat
Persatuan Buah Pinggang Sabah
Persatuan Dialisis Cahaya Kuching
Persatuan Dialisis Kurnia PJ
Persatuan Hemodialysis Kinabalu Sabah
Persatuan Kebajikan Haemodialysis St Anne BM
Persatuan Membaiki Akhlak-Che Luan Khor_NKF
Pertubuhan Bakti Fo En Bandar Kulim
Pertubuhan Dialisis Rotary-Satu Hati
Pertubuhan Hemodialisis Muhibbah Segamat (Labis)
Pertubuhan Hemodialisis Muhibbah
Pertubuhan Hemodialisis SPS
Pertubuhan Kebajikan Amitabha
CC#
Yes
Yes
No
No
Yes
Yes
No
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
No
No
Yes
Yes
Yes
No
No
No
No
Pertubuhan Kebajikan Hemodialisis Hospital Pakar Putra Melaka Yes
No
Pertubuhan Perkhidmatan Haemodialisis Ar-Ridzuan
Yes
Pertubuhan Perkhidmatan Hemodialisis AIXIN Kerian
Yes
Peter Mole MAA-Medicare Charity Dialysis Centre
No
Ping Rong-NKF
No
PJCC Dialysis Centre
PMA Chan Meng Khor-MAA Medicare Charity Dialysis Centre No
Yes
Pontian Hospital
Yes
Pontian Rotary Haemodialysis Centre
Yes
Port Dickson Hospital
Yes
Premier Renal Care
Yes
Prima Dialisis Lagenda Putra
Yes
Prima Dialysis Kluang
No
Prima Dialysis Masai
Yes
Prince Court Medical Centre
Yes
Province Wellesley Renal Medifund
Yes
Pulau Pangkor Hospital
No
Pulau Pinang Hospital (Paed)
Yes
Pulau Pinang Hospital
Yes
Pusat Dialisis & Kesihatan Masjid Bandar Baru Uda
Yes
Pusat Dialisis Aiman (Shah Alam)
No
Pusat Dialisis Airah
Yes
Pusat Dialisis Albukhary
AR
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%#
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
No AR
>=80%
Haemodialysis Centre
AR
Yes >=80%
=80%
=80%
Yes >=80%
=80%
Yes >=80%
Yes >=80%
Yes >=80%
No >=80%
Yes >=80%
=80%
No >=80%
Yes >=80%
No >=80%
=80%
=80%
No >=80%
No >=80%
Yes >=80%
Yes >=80%
Yes >=80%
=80%#
=80%
Yes >=80%
Yes >=80%
Yes >=80%
Yes >=80%
Yes >=80%
Yes >=80%
=80%
Yes >=80%
Yes >=80%
Pusat Dialisis NKF-Yayasan Dialisis Pertubuhan Pendidikan Akhlak Taiping Yes >=80%
Yes >=80%
Pusat Dialisis NKF-Yayasan Sultanah Bahiyah
=80%
>=80%
>=80%
=80%
No AR
>=80%
>=80%
>=80%
=80%
=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%#
>=80%
=80%
No AR
>=80%
>=80%
>=80%
>=80%
=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
PARTICPATING HAEMODIALYSIS CENTRES 2013 (con’t)
Haemodialysis Centre
CC#
AR
Pusat Hemodialisis Mawar N. Sembilan (Seputih)
Pusat Hemodialisis Mawar N. Sembilan (Seremban)
Pusat Hemodialisis Mawar N. Sembilan (Seri Kembangan)
Pusat Hemodialisis Mergong
Pusat Hemodialisis Muar
Pusat Hemodialisis Nabilah
Pusat Hemodialisis Nilam (Semenyih)
Pusat Hemodialisis Nour
Pusat Hemodialisis Perkis
Pusat Hemodialisis Permata
Pusat Hemodialisis PMKL
Pusat Hemodialisis PUSRAWI
Pusat Hemodialisis Qaseh
Pusat Hemodialisis Rotary Kota Tinggi
Pusat Hemodialisis Rotary Kulai
Pusat Hemodialisis S P
Pusat Hemodialisis Sejahtera (Batu Pahat)
Pusat Hemodialisis Sejahtera Muar
Pusat Hemodialisis Seroja (Baling)
Pusat Hemodialisis Seroja (Kulim 1)
Pusat Hemodialisis Seroja (Kulim 2)
Pusat Hemodialisis Shah Alam
Pusat Hemodialisis Sinona
Pusat Hemodialisis SJAM Pulau Sebang
Pusat Hemodialisis Syifa (Batangkali)
Pusat Hemodialisis Syifa (Bukit Gambir)
Pusat Hemodialisis Syifa (Pendang)
Pusat Hemodialisis Waz Lian
Pusat Hemodialisis Yayasan Toh Puan Zurina
Pusat Hemodialisis Zakat (Balik Pulau)
Pusat Hemodialisis Zakat (Bukit Mertajam)
Pusat Hemodialisis Zakat (Butterworth)
Pusat Hemodialisis Zakat (Kepala Batas)
Pusat Hemodialisis Zakat (P. Pinang)
Pusat Hemodialsis Mutiara
Pusat Hemodialysis Bestari
Pusat Hemodialysis Medipro Alliance
Pusat Hemodialysis Suria (Bentong)
Pusat Hemodialysis Suria (Melaka)
Pusat Hemodialysis Suria Kuantan
Pusat Hemodialysis Yayasan Veteran ATM (Batu Caves)
Pusat Jantung Hospital Umum Sarawak
Pusat Kelestarian Dialysis
Pusat Kesihatan Jitra
Pusat Kesihatan Universiti (UTHO)
Pusat Pakar Dialisis Traktif (Besut)
Pusat Pakar Dialisis Traktif (Jitra)
Pusat Pakar Dialisis Traktif (Kuala Pilah)
Pusat Pakar Dialisis Traktif (Seremban)
Pusat Pakar Dialysis Traktif
Pusat Pakar Tawakal
Pusat Perbadanan Islam (Segamat)
Yes
No
No
Yes
No
No
Yes
Yes
No
Yes
No
No
Yes
No
Yes
Yes
No
Yes
Yes
Yes
No
No
No
No
No
No
No
Yes
Yes
Yes
Yes
Yes
No
Yes
No
No
No
Yes
Yes
No
No
Yes
Yes
Yes
No
No
No
Yes
No
Yes
No
Yes
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
=80%
>=80%
=80%
=80%
>=80%
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
=80%
>=80%
=80%
>=80%
No AR
=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
No AR
=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
PARTICPATING HAEMODIALYSIS CENTRES 2013 (con’t)
Haemodialysis Centre
CC#
AR
Quality Dialysis Care (Sg Besar)
Quality Dialysis Care (Sg. Petani Selatan)
Quality Dialysis Care (Sg. Petani Utara)
Quality Dialysis Care (Sg. Siput)
Quality Dialysis Care (Tanjung Karang)
Quality Dialysis Care (Wangsa Maju)
Queen Elizabeth Hospital
Raja Perempuan Zainab II Hospital
Raja Permaisuri Bainun Hospital
Ranau Hospital
Raub Dialysis Centre
Raub Hospital
Rawatan Dialisis Bukit Tinggi
Rejang Medical Centre
Renal Associates
Renal Care (Ipoh Specialist)
Renal Care (Kedah)
Renal Care Dialysis Services
Renal Dialysis Centre
Renal Life Dialysis Centre
Renal Link (Penang)
Renal Therapy Services
Renal-Link (Kelantan)
S.P. Menon Dialysis Centre (Klang)
S.P. Menon Dialysis Centre (Kuala Lumpur)
S.P. Menon Dialysis Centre (Petaling Jaya)
Saratok Hospital
Sarawak General Hospital
Sarikei Hospital
Sayang Dialysis Selayang
Seberang Jaya Hospital
Seberang Perai (Bagan)
Segamat Hospital
Selama Hospital
Selayang Hospital (Paed)
Selayang Hospital
Semporna Hospital
Sentosa Medical Centre
Serdang Hospital
Seremban Specialist Hospital
Seri Benut Dialysis
Seri Manjung Hospital
Serian Hospital
Setiu Hospital
Sg Siput Hospital
Sibu Hospital
Sibu Kidney Foundation
Sik Hospital
Sime Darby Medical Centre Parkcity
Sime Darby Medical Centre Subang Jaya
Simunjan Hospital
Sinar Haemodialysis (Batu Pahat)
Yes
No
No
Yes
No
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
No
Yes
No
No
No
No
Yes
Yes
No
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
No
Yes
Yes
No
No
No
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
>=80%
=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
=80%
=80%
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
Haemodialysis Centre
CC#
Sinar Haemodialysis (Parit Raja)
Sinar Hemodialisis
Sipitang Hospital
SJ Dialysis Centre (Bidor)
SJ Dialysis Centre (Ipoh)
SJ Dialysis Centre (Seberang Jaya)
SJAM_KPS Pusat Hemodialisis Centre 10 (Bintulu)
SJAM_KPS Pusat Hemodialisis Centre 15 (Ipoh)
SJAM-KPS Haemodialysis Centre 1 (Raja Muda Musa)
SJAM-KPS Haemodialysis Centre 11 (Shah Alam)
SJAM-KPS Haemodialysis Centre 12 (Balakong)
SJAM-KPS Haemodialysis Centre 2 (Klang)
SJAM-KPS Haemodialysis Centre 3 (Banting)
SJAM-KPS Haemodialysis Centre 5 (Rawang)
SJAM-KPS Haemodialysis Centre 6 (Kuala Selangor)
SJAM-KPS Haemodialysis Centre 8 (Sibu)
SJAM-KPS Haemodialysis Centre 9 (Raub)
SJAM-KPS Pusat Hemodialisis Tasik Puteri
Slim River Hospital (Tanjong Malim)
Smartcare Dialysis Centre (Subang Jaya)
Smartcare Dialysis Clinic (Cheras)
Sri Aman Hospital
Sri Kota Medical Centre
Subang Dialysis Centre
Sultan Abdul Halim Hospital
Sultan Haji Ahmad Shah Hospital
Sultan Ismail Hospital (Paed)
Sultan Ismail Hospital
Sultanah Aminah Hospital
Sultanah Bahiyah Hospital
Sultanah Nur Zahirah Hospital
Sungai Bakap Hospital
Sungai Buloh Hospital
Sunway Medical Centre (2)
Sunway Medical Centre
Superkids Trinity-NKF Dialysis Centre
Suria Dialysis Centre (Temerloh)
Suriya Dialysis Centre
Systemic Dialysis Centre (2)
Systemic Dialysis Centre
Syukur Dialisis (Petaling Jaya)
Syukur Dialisis (Puchong)
Syukur Dialisis (Shah Alam)
Taiping Hospital
Taiping Medical Centre
Tambunan Hospital
Tampin Hospital
Tan Sri Muhyiddin Charity Dialysis Centre
Tanah Merah Hospital
Tangkak Hospital
Tangkak Lions Renal Centre
Tanjung Karang Hospital
No
No
Yes
Yes
No
No
No
Yes
Yes
Yes
No
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
No
No
Yes
No
Yes
No
No
No
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Note: *=Ceased 2013, CC# =Award of Compliance Certificate, AR=annual treatment return
xii
AR
=80%
=80%
>=80%
>=80%
=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
PARTICPATING HAEMODIALYSIS CENTRES 2013 (con’t)
Haemodialysis Centre
CC#
AR
Tapah Hospital
Tawau Hospital
Teluk Intan Hospital
Temenggong Seri Maharaja Tun Ibrahim Hospital
Tenang Haemodialysis Centre
Tenang Haemodialysis Jasin
Tengku Ampuan Afzan Hospital (Paed)
Tengku Ampuan Afzan Hospital
Tengku Ampuan Jemaah Hospital
Tengku Ampuan Rahimah Hospital
Tengku Anis Hospital
Tenom Hospital
The Kidney Dialysis Centre (1)
The Kidney Dialysis Centre (2)
The Nayang-NKF Dialysis Centre
The Penang Community HD Society
The Rotary HD Centre (Johor Bahru)
Timberland Medical Centre
Total Kidney Care Haemodialysis
TSC Renal Care
Tuanku Ampuan Najihah Hospital
Tuanku Fauziah Hospital
Tuanku Ja'afar Hospital (Paed)
Tuanku Ja'afar Hospital
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
No
Yes
Yes
Yes
Yes
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
Haemodialysis Centre
CC#
Tuaran Hospital
Tulips Dialysis Centre
Tumpat Hospital
Tung Shin Hospital & Yayasan Nanyang Press
Tung Shin Hospital
Unit Hemodialisis Komuntiti Kodiang
Universiti Kebangsaan Malaysia Bangi
Universiti Sains Malaysia Hospital
University Malaya Medical Centre
University Malaya Specialist Centre
Woh Peng Cheang Seah
Yakin Jaya Haemodialysis
Yan Hospital
Yayasan Dialysis Pendidikan Akhlak Perak-NKF Ipoh
Yayasan Kebajikan SSL Puchong
Yayasan Kebajikan SSL
Yayasan Pembangunan Keluarga Johor-NKF
Yayasan Rotary Kluang
YKN Dialisis (Kuala Lumpur)*
YKN Dialisis Kota Bharu
YKN Dialisis Kuala Pilah
YKN Dialisis Rompin
Zhi En Dialysis Centre
Yes
Yes
Yes
Yes
Yes
Yes
Yes
No
No
No
Yes
No
No
Yes
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
No
AR
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
=80%
>=80%
>=80%
>=80%
PARTICIPATING PD CENTRES 2013
Peritoneal dialysis centre
CC#
96 Hospital Angkatan Tentera (Lumut)
Besut Hospital
BP Renal Care (Batu Pahat)*
Duchess of Kent Hospital
Hospital Pakar Sultanah Fatimah (Muar)
Kemaman Hospital
Kuala Lumpur Hospital (Paed.)
Kuala Lumpur Hospital
Likas Hospital (Paed)
Melaka Hospital
Normah Medical Specialist Centre
Pantai Hospital Batu Pahat
Prince Court Medical Centre
Pulau Pinang Hospital (Paed)
Pulau Pinang Hospital
Pusat Perubatan Universiti Kebangsaan Malaysia
Queen Elizabeth Hospital
Raja Perempuan Zainab II Hospital
Raja Permaisuri Bainun Hospital
No
No
No
No
Yes
No
Yes
Yes
No
Yes
Yes
No
No
Yes
Yes
No
Yes
Yes
Yes
AR
=80%
No AR
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
Peritoneal dialysis centre
CC#
Renal Dialysis Centre
Sarawak General Hospital
Selayang Hospital (Paed)
Selayang Hospital
Serdang Hospital
Sultan Haji Ahmad Shah Hospital
Sultan Ismail Hospital (Paed)
Sultanah Aminah Hospital
Sultanah Bahiyah Hospital
Sultanah Nur Zahirah Hospital
Tawau Hospital
Tengku Ampuan Afzan Hospital (Paed)
Tengku Ampuan Afzan Hospital
Tengku Ampuan Rahimah Hospital
Tuanku Ja'afar Hospital (Paed)
Tuanku Ja'afar Hospital
Universiti Sains Malaysia Hospital
University Malaya Medical Centre
No
Yes
No
Yes
Yes
No
Yes
Yes
Yes
No
No
No
No
Yes
No
Yes
No
Yes
Note: *=Ceased 2013, CC# =Award of Compliance Certificate, AR=annual treatment return
xiii
AR
No AR
>=80%
=80%
>=80%
=80%
>=80%
>=80%
=80%
>=80%
=80%
>=80%
>=80%
=80%
PARTICIPATING TRANSPLANT FOLLOW-UP CENTRES 2013
Renal transplant follow-up centre
CC#
AR
Assunta Hospital
Bintulu Hospital
Duchess of Kent Hospital
Dungun Hospital
Fan Medical Renal Clinic
Hospital Enche' Besar Hajjah Khalsom
Hospital Sultanah Nora Ismail
Klinik Dr Choo & Liew
KPJ Sabah Specialist Hospital
Kuala Lumpur Hospital (Paed)
Kuala Lumpur Hospital
Labuan Hospital
Mahkota Medical Centre
Melaka Hospital
Mersing Hospital
Miri Hospital
Pakar Sultanah Fatimah Muar Hospital
Pontian Hospital
Prince Court Medical Centre
Pulau Pinang Hospital
Pusat Perubatan Universiti Kebangsaan Malaysia
Yes
Yes
Yes
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
No
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
>=80%
>=80%
>=80%
>=80%
No AR
>=80%
>=80%
>=80%
No AR
>=80%
>=80%
>=80%
No AR
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
Renal transplant follow-up centre
CC#
Queen Elizabeth Hospital
Raja Perempuan Zainab II Hospital
Raja Permaisuri Bainun Hospital
Sarawak General Hospital
Segamat Hospital
Selayang Hospital
Serdang Hospital
Sibu Hospital
Sultan Ismail Hospital (Paed)
Sultan Ismail Pandan Hospital
Sultanah Aminah Hospital
Sultanah Bahiyah Hospital
Sultanah Nur Zahirah Hospital
Taiping Hospital
Tan Medical Renal Clinic
Tawau Hospital
Tg. Ampuan Afzan Hospital
Tg. Ampuan Rahimah Hospital
Tuanku Ja'afar Hospital
Universiti Sains Malaysia Hospital
University Malaya Medical Centre
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
Yes
No
Yes
Note: *=Ceased 2013, CC# =Award of Compliance Certificate, AR=annual treatment return
xiv
AR
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
>=80%
=80%
CONTRIBUTING AUTHORS
CHAPTER TITLE
1
2
3
4
5
6
ALL RENAL REPLACEMENT
THERAPY IN MALAYSIA
DIALYSIS IN MALAYSIA
DEATH AND SURVIVAL ON DIALYSIS
QOL AND REHABILITATION OUTCOMES
ON DIALYSIS PATIENT IN MALAYSIA
PAEDIATRIC RENAL REPLACEMENT
THERAPY
MANAGEMENT OF ANAEMIA
IN DIALYSIS PATIENTS
AUTHORS
Kuala Lumpur Hospital
Ong Loke Meng
Pulau Pinang Hospital
Goh Bak Leong
Serdang Hospital
Lee Day Guat
National Renal Registry
Goh Bak Leong
Serdang Hospital
Lim Yam Ngo
Kuala Lumpur Hospital
Ong Loke Meng
Penang Hospital
Ghazali B Ahmad
Kuala Lumpur Hospital
Lee Day Guat
National Renal Registry
Wong Hin Seng
Selayang Hospital
Ong Loke Meng
Penang Hospital
Liu Wen Jiun
Sultanah Aminah Hospital
Chew Thian Fook
Seremban Specialist Hospital
Christopher Lim Thiam Seong
University Putra Malaysia
Tan Wee Ming
Sunway Medical Centre
Yia @ Yeow Hua Jern
Hospital Pakar Sultanah Fatimah
Lee Ming Lee
Tuanku Ja'afar Hospital
Lim Yam Ngo
Kuala Lumpur Hospital
Lynster Liaw Chiew Tung
Penang Hospital
Susan Pee
Sultan Ismail Hospital
Wan Jazilah Wan Ismail
Selayang Hospital
Yap Yoke Chin
Kuala Lumpur Hospital
Philip N. Jeremiah
KPJ Ampang Puteri Specialist Hospital
Bee Boon Cheak
Selayang Hospital
Ghazali B Ahmad
Kuala Lumpur Hospital
Lim Soo Kun
University Malaya Specialist Centre
Zawawi B Nordin
Winnie Chee Siew Swee
Sultanah Nur Zahirah Hospital
Pusat Perubatan Universiti Kebangsaan
Malaysia
International Medical University
Tilakavati Karupaiah
Faculty of Allied Health Sciences University
Kebangsaan Malaysia
Abdul Halim B Abdul Gafor
7
8
9
10
11
12
13
NUTRITIONAL STATUS ON DIALYSIS
BLOOD PRESSURE CONTROL AND
DYSLIPIDAEMIA
CHRONIC KIDNEY DISEASE MINERAL AND BONE DISORDERS
HEPATITIS ON DIALYSIS
HEAEMODIALYSIS PRACTICES
CHRONIC PERITONEAL
DIALYSIS PRACTICES
RENAL TRANSPLANTATION
INSTITUTIONS
Lim Yam Ngo
Koh Keng Hee
Sarawak General Hospital
Ahmad Fauzi B Abd Rahman
Puteri Specialist Hospital
S. Prasad Menon
Sime Darby Medical Centre Subang Jaya
Hooi Lai Seong
Sultanah Aminah Hospital
Lee Wan Tin
Sime Darby Medical Centre Subang Jaya
Sunita Bavanandan
Kuala Lumpur Hospital
Kok Lai Sun
Bukit Mertajam Hospital
Rozina Bt Ghazalli
Pulau Pinang Hospital
Ching Chen Hua
Sultanah Bahiyah Hospital
Fan Kin Sing
Gleneagles Intan Medical Centre
Liew Yew Fong
Pulau Pinang Hospital
Clare Tan Hui Hong
Sarawak General Hospital
Teo Sue Mei
Putri Haemodialysis Centre (Ipoh)
Chow Yok Wai
Pantai Air Keroh Hospital
Thiruventhiran Thilaganathan
Sunway Medical Centre
Ng Eng Khim
TAR University
Shahnaz Shah Firdaus Khan
Tengku Ampuan Rahimah Hospital
Tan Chwee Choon
Tengku Ampuan Rahimah Hospital
Norleen Bt Zulkarnain Sim
Tengku Ampuan Rahimah Hospital
Rafidah Abdullah
Sultan Haji Ahmad Shah Hospital
Sunita Bavanandan
Kuala Lumpur Hospital
Lily Mushahar
Tuanku Ja'afar Hospital
Anita Bhajan Manocha
Hospital Seberang Jaya
Rosnawati Yahya
Kuala Lumpur Hospital
Goh Bak Leong
Serdang Hospital
Fan Kin Sing
Gleneagles Intan Medical Centre
S. Prasad Menon
Sime Darby Medical Centre Subang Jaya
Tan Si Yen
Prince Court Medical Centre
Wong Hin Seng
Rohan Malek Bin Dato' Dr. Johan
Selayang Hospital
Selayang Hospital
xv
FOREWORD
Despite many uncertainties in many areas in health sector in this country, the production of the Annual Report of the Malaysian Dialysis
and Transplant Registry will be an exception as uninterrupted annual publication now enters its 21st year of existence. Notwithstanding
the challenges associated with the ever growing number of incident and prevalent patients with CKD5D and CKDT as well as the number
of SDPs which totaled 780 last year, the dedication and enthusiasm of various individuals and parties did ensure that we reach the readers
and MDTR users once again in a timely manner.
As usual, the latest MDTR reports are expected to be used and cited by many interested parties including clinicians, health industry, policy
makers, health planners, health regulators and even lawmakers. At the international front, MDTR data made its way, as in its past years, to
USRDS and the Global Report on Transplantation for the World Health Organisation. For these reasons, it becomes a paramount importance
for the NRR to ensure that the data reported in the annual MDTR achieve a high degree of credibility. Even though data submission by the
data providers started on voluntary basis and remained so for many years, the requirements under the Private Healthcare and Facilities
Regulations 2006 and the Accreditation of Haemodialysis Services by the Malaysian Society for Quality in Health, Malaysia 2013, made it
incumbent on the 600 odd haemodialysis units in the country, both public and private, to submit various data in the form of Annual Returns,
Patient and Outcome Notification and Annual Surveys to the registry.
In the near future, it is expected that some form of checks and audits will be performed on the data submitted by the SDPs to verify their
accuracy. On a longer term basis, it is possible that further transparency will be demanded by the public as well as the funding agencies
to get the dialysis centres’ performance to be published and the respective centres be identified openly for comparisons. This practice is
already taking place in several European countries and is just a matter of time before its application locally.
On behalf of the registry Advisory Committee, I wish to express my utmost appreciation to all the financial sponsors, in particular Roche
Malaysia Sdn Bhd, which had shown their continued generosity and commitment to support NRR. The Source Data Providers who had
diligently and consistently submit useful and quality data annually, continue to encourage us to persist with the registry works despite all
its challenges. The Expert Committee members who persevered in their volunteerism provided important and relevant commentaries on
the important observations associated with the registry data and trends remain an all important part of the registry contributors. The new
Editorial Board led jointly by Dr. Goh Bak Leong and Dato’ Dr. Ong Loke Meng had been able to take on the challenges to get the` jobs done’
and completed. The unsurpassed commitments and perseverance of the NRR administrators led by Staff Nurse Lee Day Guat will not go
unnoticed, worthy of special mention and are definitely appreciated.
Thank you all.
Datuk Dr. Ghazali Ahmad
Chairman
Advisory Committee 2012-2014
National Renal Registry
xvi
CONTENTS
Acknowledgement
NRR Advisory Board Members
About The Malaysian Dialysis and Transplant Registry (MDTR
Participating Haemodialsyis Centres
Participating Chronic Peritoneal Dialsysis Centres
Participating Transplant Follow-up Centres
Contributing Editors
Foreword
Chapters & Sections
List of Tables
List of Figures
Executive Summary
Abbrevation
iii
iv
v
vii - xiii
xiii
xiv
xv
xvi
xvii - xiv
xx - xxv
xxvi - xxx
xxxi
xxxii
CHAPTER 1:
ALL RENAL REPLACEMENT THERAPY IN MALAYSIA
1
SECTION 1.1:
STOCK AND FLOW
2
SECTION 1.2:
TREATMENT PROVISION RATE
3
CHAPTER 2:
DIALYSIS IN MALAYSIA
5
SECTION 2.1:
PROVISION OF DIALYSIS IN MALAYSIA (Registry report)
6
2.1.1:
Dialysis treatment provision
6
2.1.2:
Geographic distribution
7
2.1.3:
Gender distribution
7
2.1.4:
Age distribution
8
2.1.5:
Method and location of dialysis
9
2.1.6:
Funding for dialysis treatment
10
2.1.7:
Distribution of dialysis patients by sector
11
2.1.8:
Primary renal disease
11
DIALYSIS PROVISION IN MALAYSIA (Centre survey report)
12
2.2.1:
Growth in dialysis in Malaysia by state and sector
12
2.2.9:
Manpower in dialysis centres
28
CHAPTER 3:
DEATH AND SURVIVAL ON DIALYSIS
31
SECTION 3.1:
DEATH ON DIALYSIS
32
SECTION 3.2:
PATIENT SURVIVAL ON DIALYSIS
34
3.2.1:
Patient survival by type of dialysis modality
34
3.2.2:
Patient survival by year of starting dialysis
36
3.2.3:
Patient survival by age at starting dialysis
37
3.2.4:
Patient survival by diabetic status
38
SURVIVAL OF INCIDENCE PATIENTS BY CENTRE
38
3.3.1:
Survival of incident haemodialysis patients 2004-2012 by centre
38
3.3.2:
Survival of incident PD patients by centre
40
ADJUSTED MORTALITY OF DIALYSIS PATIENT
41
3.4.1:
Adjusted hazard ratio for mortality of dialysis patients
41
3.4.2:
Adjusted hazard ratio for mortality of haemodialysis patients
44
3.4.3:
Adjusted hazard ratio for mortality of peritoneal dialysis patients
46
3.4.4:
Risk adjusted mortality rate for haemodialysis patients by haemodialysis centres
48
3.4.5:
Risk Adjusted Mortality Rate by PD centres
48
SECTION 2.2:
SECTION 3.3:
SECTION 3.4:
xvii
CONTENTS
(CONT.)
QUALITY OF LIFE AND REHABILITATION OUTCOMES OF DIALYSIS PATIENTS IN MALAYSIA
49
SECTION A:
QoL INDEX SCORE
50
SECTION B:
WORK RELATED REHABILITATION
52
PAEDIATRIC RENAL REPLACEMENT THERAPY
53
SECTION A:
RRT PROVISION FOR PAEDIATRIC PATIENTS
54
SECTION B:
DISTRIBUTION OF PAEDIATRIC DIALYSIS PATIENTS
56
SECTION C:
PRIMARY RENAL DISEASE
58
SECTION D:
TYPES OF RENAL TRANSPLANTATION
58
SECTION E:
SURVIVAL ANALYSIS
59
SECTION F:
HAEMODIALYSIS PRACTICE
61
SECTION G:
ANAEMIA TREATMENT
62
CHAPTER 6:
MANAGEMENT OF ANAEMIA IN DIALYSIS PATIENTS
65
SECTION 6.1:
TREATMENT FOR ANAEMIA IN PATIENT ON