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pa ents had rheumatoid nodules. The percentages of pa ents with each extraar cular manifesta ons are listed below.
Manifesta Ɵ on
Numbers Percentage
Keratoconjunc vi s sicca 226
22.6 Inters al lung disease
61 6.1
Anaemia due to RA disease ac vity 37
3.7 Rheumatoid nodules
61 6.1
Eye infl amma on 8
0.8 Fever
5 0.5
Raynaud’s 4
0.4 Entrapment neuropathy
4 0.4
Atlanto-axial subluxa on 4
0.4 Cutaneous vasculi s
3 0.3
Mononeuropathy 2
0.2 Polyneuropathy
1 0.1
Felty’s syndrome 1
0.1 Cervical myelopathy
1 0.1
Pleural e ff usion
Pericardi se ff usion
Amyloidosis Lymphadenopathy
Others 9
0.9 Table 5: Extraar cular manifesta ons
3.5 DISEASE STATUS AT 1ST NOTIFICATION
The DAS28 score is used to assess pa ent’s disease ac vity. The DAS28 score is calculated based on the number of swollen and tender joints only 28 joints
are assessed, general health assessment using a pa ent visual analogue scale and either ESR or CRP. Pa ents are then categorized into either having low
DAS28 2.6 to 3.2, moderate DAS28 3.2 to 5.1 or high DAS28 5.1 disease ac vity states or in remission DAS29 2.6. Those whose DAS28 scores cannot
be obtained for various reasons were classifi ed as unknown. Nearly half of the pa ents in this cohort were in the moderate and high disease categories.
PRELIMINARY REPORT: APRIL 2009 - AUGUST 2010 National Infl ammatory Arthritis Registry NIAR
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5 10
15 20
25 30
35
Remission 13.9
16.5 31.5
16 22.1
Unknown
Disease ac vity based on DAS28 ESRCRP score
Figure 13: Disease status at 1st no fi ca on
DISEASE BURDEN
PRELIMINARY REPORT: APRIL 2009 - AUGUST 2010 National Infl ammatory Arthritis Registry NIAR
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4. DISEASE BURDEN
4.1 WORK STATUS
Full me Re red
Part- me Home-maker
Unemployed due to disease Unemployed due to family
Unemployed others 2
26 32
51.8 due to disease
32 8 unempliyed
Figure 14: Work status and reasons for unemployment 8 of pa ents were unemployed but signifi cantly, nearly 52 of those
who were unemployed a ributed this to their disease. 32 of pa ents were home-makers.
4.2 DAYS OF SICK LEAVE TAKEN DUE TO ARTHRITIS IN THE PAST 3 MONTHS
10 8
6 4
2 8.1
1 to 14 15 to 30
31 to 45 46 to 60
61 to 75 76 to 90
0.3 0.1
Number of days of pa ents
Figure 15: Days of sick leave taken due to arthri s in the past 3 months Out of the 338 pa ents who were employed, 81 pa ents took between 1 to 14
days of sick leave due to arthri s. 3 pa ents took between 15 to 30 days of sick leave and 1 pa ent took sick between 46 to 60 days. None took more than 60
days of sick leave.
STANDARD OF CARE
