GAMBARAN DUKUNGAN KELUARGA MENURUT REMAJA DENGAN TALASEMIA MAYOR DI KLINIK TALASEMIA RSUP DR. HASAN SADIKIN BANDUNG.
ABSTRAK
Penderita talasemia mayor usia remaja mengalami gangguan fisik dan
psikologis sehingga membutuhkan dukungan keluarga yang optimal. Sejauh ini
belum diketahui bagaimana gambaran dukungan keluarga menurut remaja
talasemia mayor di RSUP Dr. Hasan Sadikin Bandung. Tujuan penelitian
mengetahui gambaran dukungan keluarga menurut remaja dengan talasemia
mayor di Klinik Talasemia RSUP Dr. Hasan Sadikin Bandung.
Metode penelitian yang digunakan yaitu deskriptif kuantitatif. Jumlah
responden dalam penelitian ini 57 orang yang direkrut melalui teknik accidental
sampling. Analisa data menggunakan statistik deskripif dalam bentuk persentase.
Hasil penelitian menunjukan bahwa bentuk dukungan keluarga dari
persentase mendukung tertinggi keterendah menurut responden yaitu dukungan
emosional, informasional, instrumental dan penilaian.
Kesimpulan penelitian yaitu sebagian besar responden mendapatkan
dukungan emosional dari keluarga. Dukungan keluarga dibutuhkan oleh remaja
talasemia mayor sesuai dengan tahap perkembangannya, keluarga perlu menggali
kebutuhan remaja talasemia mayor secara menyeluruh agar kualitas hidupnya
meningkat.
Kata kunci: Dukungan Keluarga, Remaja Talasemia Mayor
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ABSTRACT
Adolescence with thalassemia major experience physical and
psychological disorders so they needs optimal family support. Haven’t know yet
how describe of family support by thalassemia major adolescence at RSUP Dr.
Hasan Sadikin Bandung. The purpose of the study was found out description of
family support by adolescence with thalassemia major at Thalassemia Clinic of
RSUP Dr. Hasan Sadikin Bandung.
The method of the research was descriptive quantitative. 57 respondents
recruited by accidental sampling technique. The data analysis used descriptive
statistics in the form of percentages.
The results showed that family support from the highest percentages to the
lowest was emotional support, informational, instrumental, and appraisal.
The conclution of the research was almost respondents got emotional
support from their family. Family support needed by adolescence with
thalassemia major in their stage of development, families must to dig adolescence
with thalassemia’s need as a whole in order to increase their quality of life.
Keywords: Adolescence, Family Support, Thalassemia Major
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Penderita talasemia mayor usia remaja mengalami gangguan fisik dan
psikologis sehingga membutuhkan dukungan keluarga yang optimal. Sejauh ini
belum diketahui bagaimana gambaran dukungan keluarga menurut remaja
talasemia mayor di RSUP Dr. Hasan Sadikin Bandung. Tujuan penelitian
mengetahui gambaran dukungan keluarga menurut remaja dengan talasemia
mayor di Klinik Talasemia RSUP Dr. Hasan Sadikin Bandung.
Metode penelitian yang digunakan yaitu deskriptif kuantitatif. Jumlah
responden dalam penelitian ini 57 orang yang direkrut melalui teknik accidental
sampling. Analisa data menggunakan statistik deskripif dalam bentuk persentase.
Hasil penelitian menunjukan bahwa bentuk dukungan keluarga dari
persentase mendukung tertinggi keterendah menurut responden yaitu dukungan
emosional, informasional, instrumental dan penilaian.
Kesimpulan penelitian yaitu sebagian besar responden mendapatkan
dukungan emosional dari keluarga. Dukungan keluarga dibutuhkan oleh remaja
talasemia mayor sesuai dengan tahap perkembangannya, keluarga perlu menggali
kebutuhan remaja talasemia mayor secara menyeluruh agar kualitas hidupnya
meningkat.
Kata kunci: Dukungan Keluarga, Remaja Talasemia Mayor
vii
ABSTRACT
Adolescence with thalassemia major experience physical and
psychological disorders so they needs optimal family support. Haven’t know yet
how describe of family support by thalassemia major adolescence at RSUP Dr.
Hasan Sadikin Bandung. The purpose of the study was found out description of
family support by adolescence with thalassemia major at Thalassemia Clinic of
RSUP Dr. Hasan Sadikin Bandung.
The method of the research was descriptive quantitative. 57 respondents
recruited by accidental sampling technique. The data analysis used descriptive
statistics in the form of percentages.
The results showed that family support from the highest percentages to the
lowest was emotional support, informational, instrumental, and appraisal.
The conclution of the research was almost respondents got emotional
support from their family. Family support needed by adolescence with
thalassemia major in their stage of development, families must to dig adolescence
with thalassemia’s need as a whole in order to increase their quality of life.
Keywords: Adolescence, Family Support, Thalassemia Major
viii