Perbedaan Kualitas Hidup Anak Penyakit Jantung Bawaan Pascaoperasi Jantung dengan Anak Sehat
DAFTAR PUSTAKA
1.
McCrindle BM. Prevalence of congenital cardiac disease. Dalam :
Anderson RH, Baker EJ, Penny D, Redington AN, Rigby ML, Wernovsky
G. Paediatric Cardiology. Edisi 3. Philadelphia: Churcill Livingstone.
2010.h.143-59.
2.
Sastroasmoro S, Madiyono B. Penatalaksaan penyakit jantung bawaan.
Dalam: Sastroasmoro S, Madiyono B, penyunting. Buku Ajar Kardiologi
Anak. Jakarta: Penerbit IDAI. 1994.h.87-98.
3.
Tahirovic E, Begic H, Tahirovic H, Varni JW. Quality of life in children
after cardiac surgery for congenital heart disease. Coll Antropol. 2011;
35:1285-90.
4.
Tchervenkov CI, Jacobs JP, Bernier P, Stellin G, Kurosawa H, Mavroudis
C, dkk. The improvement of care for paediatric and congenital cardiac
disease across the world: a challenge for the world society for pediatric
and congenital heart surgery. Cardiol Young. 2008; 18:63-9
5.
Daliento L, Mapelli D, Volpe B. Measurement of cognitive outcome and
quality of life in congenital heart disease. Heart. 2006;92:569-74.
6.
Loup O, Weissenfluh CV, Gahl B, Schwerzmann M, Carrel T, Kadner A.
Quality of life of grown up congenital heart disease patients after
congenital cardiac surgery. Eur J Cardiothorac Surg. 2009; 36:105-11.
7.
Djer MM, Madiyono B. Tatalaksana penyakit jantung bawaan. Sari
Pediatri. 2000; 2:155-62.
8.
Tsai W, Klein BL. The postoperative cardiac patient. Clin Ped Emerg
Med. 2005; 6:216-21.
9.
Karamlou TB, Welke TF, Ungerleider RM. Congenital heart disease.
Dalam: Brunicardi FC, penyunting. Schwartz’s Principles of Surgery.
Edisi ke-9. New York: McGrawHill Companies. 2010.h.591-626.
10. Backer CL, Mavroudis C. Palliative operations for congenital heart
disease. Dalam: Kaiser LR, Kron IL, Spray TL, penyunting. Mastery of
cardiothoracic surgery. Edisi kedua. Philadelphia: Lippincott Williams &
Wilkins. 2007.h.694-707
11. Burke RP. Patent ductus arteriosus. Dalam: Kaiser LR, Kron IL, Spray
TL, penyunting. Mastery of cardiothoracic surgery. Edisi kedua.
Philadelphia: Lippincott Williams & Wilkins. 2007:h.717-721.
12. Mainwaring RD, Lamberti JJ. Atrial septal defects. Dalam: Kaiser LR,
Kron IL, Spray TL, penyunting. Mastery of cardiothoracic surgery. Edisi
kedua. Philadelphia: Lippincott Williams & Wilkins. 2007.h.740-49
13. Knott-Craig CJ. Ventricular septal defects. Dalam: Kaiser LR, Kron IL,
Spray TL, penyunting. Mastery of cardiothoracic surgery. Edisi kedua.
Philadelphia: Lippincott Williams & Wilkins. 2007.h.751-8
14. Jaquiss RDB. Tetralogy of fallot. Dalam: Kaiser LR, Kron IL, Spray TL,
penyunting. Mastery of cardiothoracic surgery. Edisi kedua. Philadelphia:
Lippincott Williams & Wilkins. 2007.h.908-25
15. Park MK. Specific congenital heart defects. Dalam: Park MK, penyunting.
Pediatric cardiology for practitioners. Edisi kelima. Philadelphia: Mosby
Inc. 2008:h.205-373
16. Spray TL. Transposition of great arteries. Dalam: Kaiser LR, Kron IL,
Spray TL, penyunting. Mastery of cardiothoracic surgery. Edisi kedua.
Philadelphia: Lippincott Williams & Wilkins. 2007.h.856-72
17. Moons P, Deyk KV, Marquet K, Raes E, Bleser LD, Budts W, Geest SD.
Individual quality of life in adults with congenital heart disease: a
paradigm shift. Eur Heart J. 2004; 26:298-307.
18. Varni JW, Burwinkle TM, Seid M. The PedsQL as a pediatric patientreported outcome: reliability and validity of the PedsQL measurement
model in 25.000 children. Exp Rev Pharmacoeconomics Outcomes Res.
2005; 5:705-19.
19. Marino BS, Tomlinson RS, Drotar D, Claybon ES, Aguirre A, Ittenbach R.
Quality-of-life concerns differ among patients, parents, and medical
providers in children and adolescents with congenital and acquired heart
disease. Pediatrics. 2009; 123:708-15.
20. Solans M, Pane S, Dolors-Estrada M, Serra-Sutton V, Berra S, Herdman
M, et al. Health-related quality of life measurement in children and
adolescents: a systematic review of generic and disease-specific
instruments. Value in Health. 2008; 11(4):742-64.
21. Nousi D, Christou A. Factors affecting the quality of life in children with
congenital heart disease. Health Science Journal. 2010; 4(2):94-103.
22. Nakou S. Measurement of quality of life in the health care field.
Applications in child birth. Archives of Hellenic Medicine. 2001;18(3):254266.
23. Helseth S, Misvaer N. Adolescents’ perceptions of quality of life: what it is
and what matters. J Clin Nurs. 2010; 19:1454-61.
24. Gupta S., Giuffre RM., Crawford S., Waters J.. Covert fears, anxiety and
depression in congenital heart disease. Cardiol Young 1998;8(4):491499.
25. Visconti KJ, Saudino KJ, Rappaport LA, Newburger JW, Bellinger DC.
Influence of parental stress and social support on the behavioral
adjustment of children with transposition of the great arteries. J Dev
Behav Pediatr. 2002; 23(5):314-21.
26. Wright M., Nolan T.. Impact of cyanotic heart disease on school
performance. Arch Dis Child. 1994;71(1):64-70.
27. Levy JH, Tanaka JA, Inflammatory response to cardiopulmonary bypass.
Ann Thorac Surg. 2003; 75:715-20.
28. Menahem S, Poulakis Z, Prior M. Children subjected to cardiac surgery
for congenital heart disease. Part 1- emotional and psychological
outcomes. Interactive Cardiovascular and Thoracic Surgery. 2008; 7:6004.
29. Gierat-Haponiuk K, Haponiuk I, Chojnicki M, Jaworski R, Bakula S.
Exercise capacity and the quality of life late after surgical correction of
congenital heart defects. Kardiol Pol. 2011; 69:810-5.
30. Testa MA, Simonson DC. Assessment of quality-of-life outcomes. NEJM.
1996; 334:835-40.
31. Keenaghan C, Kilroe J. A study on the quality of life tool KIDSCREEN for
children and adolescents in Ireland. 2008; 13:1-88.
1.
McCrindle BM. Prevalence of congenital cardiac disease. Dalam :
Anderson RH, Baker EJ, Penny D, Redington AN, Rigby ML, Wernovsky
G. Paediatric Cardiology. Edisi 3. Philadelphia: Churcill Livingstone.
2010.h.143-59.
2.
Sastroasmoro S, Madiyono B. Penatalaksaan penyakit jantung bawaan.
Dalam: Sastroasmoro S, Madiyono B, penyunting. Buku Ajar Kardiologi
Anak. Jakarta: Penerbit IDAI. 1994.h.87-98.
3.
Tahirovic E, Begic H, Tahirovic H, Varni JW. Quality of life in children
after cardiac surgery for congenital heart disease. Coll Antropol. 2011;
35:1285-90.
4.
Tchervenkov CI, Jacobs JP, Bernier P, Stellin G, Kurosawa H, Mavroudis
C, dkk. The improvement of care for paediatric and congenital cardiac
disease across the world: a challenge for the world society for pediatric
and congenital heart surgery. Cardiol Young. 2008; 18:63-9
5.
Daliento L, Mapelli D, Volpe B. Measurement of cognitive outcome and
quality of life in congenital heart disease. Heart. 2006;92:569-74.
6.
Loup O, Weissenfluh CV, Gahl B, Schwerzmann M, Carrel T, Kadner A.
Quality of life of grown up congenital heart disease patients after
congenital cardiac surgery. Eur J Cardiothorac Surg. 2009; 36:105-11.
7.
Djer MM, Madiyono B. Tatalaksana penyakit jantung bawaan. Sari
Pediatri. 2000; 2:155-62.
8.
Tsai W, Klein BL. The postoperative cardiac patient. Clin Ped Emerg
Med. 2005; 6:216-21.
9.
Karamlou TB, Welke TF, Ungerleider RM. Congenital heart disease.
Dalam: Brunicardi FC, penyunting. Schwartz’s Principles of Surgery.
Edisi ke-9. New York: McGrawHill Companies. 2010.h.591-626.
10. Backer CL, Mavroudis C. Palliative operations for congenital heart
disease. Dalam: Kaiser LR, Kron IL, Spray TL, penyunting. Mastery of
cardiothoracic surgery. Edisi kedua. Philadelphia: Lippincott Williams &
Wilkins. 2007.h.694-707
11. Burke RP. Patent ductus arteriosus. Dalam: Kaiser LR, Kron IL, Spray
TL, penyunting. Mastery of cardiothoracic surgery. Edisi kedua.
Philadelphia: Lippincott Williams & Wilkins. 2007:h.717-721.
12. Mainwaring RD, Lamberti JJ. Atrial septal defects. Dalam: Kaiser LR,
Kron IL, Spray TL, penyunting. Mastery of cardiothoracic surgery. Edisi
kedua. Philadelphia: Lippincott Williams & Wilkins. 2007.h.740-49
13. Knott-Craig CJ. Ventricular septal defects. Dalam: Kaiser LR, Kron IL,
Spray TL, penyunting. Mastery of cardiothoracic surgery. Edisi kedua.
Philadelphia: Lippincott Williams & Wilkins. 2007.h.751-8
14. Jaquiss RDB. Tetralogy of fallot. Dalam: Kaiser LR, Kron IL, Spray TL,
penyunting. Mastery of cardiothoracic surgery. Edisi kedua. Philadelphia:
Lippincott Williams & Wilkins. 2007.h.908-25
15. Park MK. Specific congenital heart defects. Dalam: Park MK, penyunting.
Pediatric cardiology for practitioners. Edisi kelima. Philadelphia: Mosby
Inc. 2008:h.205-373
16. Spray TL. Transposition of great arteries. Dalam: Kaiser LR, Kron IL,
Spray TL, penyunting. Mastery of cardiothoracic surgery. Edisi kedua.
Philadelphia: Lippincott Williams & Wilkins. 2007.h.856-72
17. Moons P, Deyk KV, Marquet K, Raes E, Bleser LD, Budts W, Geest SD.
Individual quality of life in adults with congenital heart disease: a
paradigm shift. Eur Heart J. 2004; 26:298-307.
18. Varni JW, Burwinkle TM, Seid M. The PedsQL as a pediatric patientreported outcome: reliability and validity of the PedsQL measurement
model in 25.000 children. Exp Rev Pharmacoeconomics Outcomes Res.
2005; 5:705-19.
19. Marino BS, Tomlinson RS, Drotar D, Claybon ES, Aguirre A, Ittenbach R.
Quality-of-life concerns differ among patients, parents, and medical
providers in children and adolescents with congenital and acquired heart
disease. Pediatrics. 2009; 123:708-15.
20. Solans M, Pane S, Dolors-Estrada M, Serra-Sutton V, Berra S, Herdman
M, et al. Health-related quality of life measurement in children and
adolescents: a systematic review of generic and disease-specific
instruments. Value in Health. 2008; 11(4):742-64.
21. Nousi D, Christou A. Factors affecting the quality of life in children with
congenital heart disease. Health Science Journal. 2010; 4(2):94-103.
22. Nakou S. Measurement of quality of life in the health care field.
Applications in child birth. Archives of Hellenic Medicine. 2001;18(3):254266.
23. Helseth S, Misvaer N. Adolescents’ perceptions of quality of life: what it is
and what matters. J Clin Nurs. 2010; 19:1454-61.
24. Gupta S., Giuffre RM., Crawford S., Waters J.. Covert fears, anxiety and
depression in congenital heart disease. Cardiol Young 1998;8(4):491499.
25. Visconti KJ, Saudino KJ, Rappaport LA, Newburger JW, Bellinger DC.
Influence of parental stress and social support on the behavioral
adjustment of children with transposition of the great arteries. J Dev
Behav Pediatr. 2002; 23(5):314-21.
26. Wright M., Nolan T.. Impact of cyanotic heart disease on school
performance. Arch Dis Child. 1994;71(1):64-70.
27. Levy JH, Tanaka JA, Inflammatory response to cardiopulmonary bypass.
Ann Thorac Surg. 2003; 75:715-20.
28. Menahem S, Poulakis Z, Prior M. Children subjected to cardiac surgery
for congenital heart disease. Part 1- emotional and psychological
outcomes. Interactive Cardiovascular and Thoracic Surgery. 2008; 7:6004.
29. Gierat-Haponiuk K, Haponiuk I, Chojnicki M, Jaworski R, Bakula S.
Exercise capacity and the quality of life late after surgical correction of
congenital heart defects. Kardiol Pol. 2011; 69:810-5.
30. Testa MA, Simonson DC. Assessment of quality-of-life outcomes. NEJM.
1996; 334:835-40.
31. Keenaghan C, Kilroe J. A study on the quality of life tool KIDSCREEN for
children and adolescents in Ireland. 2008; 13:1-88.